The effects of strabismus on quality of life in adults
The effects of strabismus on quality of life in adults
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DOI：
10.1016/j.ajo.2007.06.032
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发表时间：
2007-11-01
影响因子：
4.2
通讯作者：
Holmes, Jonathan M.
中科院分区：
文献类型：
--
作者：
Hatt, Sarah R.;Leske, David A.;Holmes, Jonathan M.
目得：作为第一步，在发展的健康相关的生活质量（HRQOL）仪器，我们进行了深入的访谈，以确定具体关注的成年人斜视。设计：前瞻性的横截面，横断面study.METHODS：30名成年人斜视，17复视，13没有被招募。个人访谈，使用11个开放式的问题，录音，转录，并由三名调查员独立审查的成绩单。关于斜视如何影响日常生活的短语被分组为主题领域和每个主题的频率进行了分析，受试者有和没有复视。结果：共提取了1,508个短语：207（14%）的1,508被排除在外，因为他们不属于HRQOL。在剩下的1,301个短语中，有48个主题领域是显而易见的。对于复视患者，最常见的主题是：非特异性负面感觉（15/17; 88%）（“非常困难”）;一般残疾（15/17; 88%）（“影响一切”）;和驾驶（14/17; 82%）。在那些没有复视的人中，最常提到的话题是他人的外表（12/13; 92%）（“人们注意到我的眼睛”），其次是眼神交流（10/13; 77%）和人际关系（10/13; 77%）。两组（n = 42）的共同主题，两个最常见的是驾驶和非特异性negative feelings.CONCLUSIONS：多个人的访谈揭示了许多主题，对斜视患者的生活质量产生负面影响。关注的频率和类型证实了HRQOL评估作为斜视管理的一个重要方面的重要性。
PURPOSE: As a first step in the development of a health-related quality of life (HRQOL) instrument, we conducted in-depth interviews to identify the specific concerns of adults with strabismus.DESIGN: Prospective cross,sectional study.METHODS: Thirty adults with strabismus, 17 with diplopia, and 13 without were recruited. Individual interviews, using 11 open-ended questions, were audio-taped, transcribed, and transcripts reviewed independently by three investigators. Phrases regarding how strabismus affected everyday life were grouped into topic areas and the frequency of each topic analyzed for subjects with and without diplopia.RESULTS: A total of 1,508 phrases were extracted: 207 (14%) of 1,508 were excluded because they did not pertain to HRQOL. From the remaining 1,301 phrases, 48 topic areas were apparent. For patients with diplopia, the most frequently occurring topics were: nonspecific negative feeling (15/17; 88%) ("really hard"); general disability (15/17; 88%) ("affects everything"); and driving (14/17; 82%). In those without diplopia, the most frequently mentioned topics were appearance to others (12/13; 92%) ("people notice my eyes") followed by problems with eye contact (10/13; 77%) and interpersonal relationships (10/13; 77%). Of the topics that were common to both groups (n = 42), two of the most frequent were driving and nonspecific negative feeling.CONCLUSIONS: Multiple individual interviews revealed many topics that negatively affect quality of life in patients with strabismus. The frequency and type of concerns confirm the importance of HRQOL assessment as an important aspect of strabismus management.