The Danish Medical Birth Register
The Danish Medical Birth Register
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DOI：
10.1007/s10654-018-0356-1
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发表时间：
2018-01-01
影响因子：
13.6
通讯作者：
Langhoff-Roos, Jens
中科院分区：
文献类型：
--
作者：
Bliddal, Mette;Broe, Anne;Langhoff-Roos, Jens
丹麦医学出生登记册成立于 1973 年，是丹麦卫生信息系统的重要组成部分。该登记册能够监测孕妇及其后代的健康，为丹麦围产期护理的质量评估提供数据，并广泛用于研究。 1997 年，登记册的结构和内容发生了重大变化，并且在过去 20 年中增加了新的变量。目的是提供自 1997 年以来登记册的更新描述，重点关注结构、内容和覆盖范围。登记册包括丹麦所有出生的数据，主要包括丹麦国家患者登记处的数据，辅以家庭分娩和死产表格。它包含民事登记系统提供的产妇年龄信息。在怀孕早期（第一次产前检查）收集有关孕前体重指数和孕早期吸烟的信息。个人层面的数据可以链接到其他丹麦健康登记处，例如国家患者登记处和丹麦国家处方登记处。该登记册为其他几个登记册/数据库提供信息，例如丹麦双胞胎登记册和丹麦胎儿医学数据库。汇总数据可在丹麦卫生数据管理局网页 (www.esundhed.dk/sundhedsregistre/MFR) 上公开访问。研究人员可以通过丹麦统计局和丹麦健康数据管理局的服务器获取个人级别的伪匿名数据。
The Danish Medical Birth Register was established in 1973. It is a key component of the Danish health information system. The register enables monitoring of the health of pregnant women and their offspring, it provides data for quality assessment of the perinatal care in Denmark, and it is used extensively for research. The register underwent major changes in construction and content in 1997, and new variables have been added during the last 20 years. The aim was to provide an updated description of the register focusing on structure, content, and coverage since 1997. The register includes data on all births in Denmark and comprises primarily of data from the Danish National Patient Registry supplemented with forms on home deliveries and stillbirths. It contains information on maternal age provided by the Civil Registration System. Information on pre-pregnancy body mass index and smoking in first trimester is collected in early pregnancy (first antenatal visit). The individual-level data can be linked to other Danish health registers such as the National Patient Registry and the Danish National Prescription Registry. The register informs several other registers/databases such as the Danish Twin Registry and the Danish Fetal Medicine Database. Aggregated data can be publicly accessed on the Danish Health Data Authority web page (www.esundhed.dk/sundhedsregistre/MFR). Researchers can obtain access to individual-level pseudo-anonymised data via servers at Statistics Denmark and the Danish Health Data Authority.