The Crisis of Sickle Cell Disease in Africa from Insights into Primary Prevention in Ghana and Nigeria: Notes from the Field.
The Crisis of Sickle Cell Disease in Africa from Insights into Primary Prevention in Ghana and Nigeria: Notes from the Field.
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从对加纳和尼日利亚一级预防的深入了解非洲镰状细胞病的危机：现场记录。
DOI：
10.1007/s10903-021-01186-8
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发表时间：
2021
影响因子：
1.9
通讯作者：
Wilkie,DianaJ
中科院分区：
文献类型：
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作者：
Ezenwa,MiriamO;Dennis-Antwi,JemimaA;Dallas,ConstanceM;Amarachukwu,Charity;Ezema,CharlesI;Yao,Yingwei;Gallo,AgathaM;Wilkie,DianaJ
镰状细胞病（SCD）是一种遗传性血液疾病，影响着尼日利亚和加纳2%的新生儿。尽管对健康造成毁灭性后果，但预防慢性阻塞性肺病在这两个国家都不是优先事项。这篇文章描述了我们的美国研究团队在加纳和尼日利亚使用基于计算机的SCD教育项目CHOICES的可行性评估。我们通过审查已发表的研究和调查在线倡导组织来确定土著合作者。这导致了对非洲的事实调查之旅，与当地顾问委员会讨论SCD的预防。小组讨论提出了三个主要建议：设计一种文化上适当的干预措施；招募社区卫生保健工作者实施选择方案；并在提高公众意识的运动中与宗教和社区领袖及长者合作。根据顾问的广泛意见，我们将修改CHOICES干预措施的内容和交付方式，以满足加纳和尼日利亚受SCD影响的人们的需求。
Sickle cell disease (SCD), an inherited blood disorder, impacts 2% of newborns in Nigeria and Ghana. Despite devastating health consequences, SCD prevention is not a priority in either country. This article describes our U.S. research team’s feasibility assessment for adapting CHOICES, a computer-based SCD education program, for use in Ghana and Nigeria. We identified indigenous collaborators by reviewing published research and investigating advocacy organizations online. This led to a fact-finding trip to Africa to discuss SCD prevention with local boards of advisors. Three major recommendations emerged from the group discussions: design a culturally appropriate intervention; enlist community healthcare workers to deliver the CHOICES program; and collaborate with religious and community leaders and elders in public awareness campaigns. Based on extensive advisor input, we will modify the content and delivery of the CHOICES intervention to meet the needs of those impacted by SCD in Ghana and Nigeria.