Professional carers' experiences of providing a pediatric palliative care service in Ireland
Professional carers' experiences of providing a pediatric palliative care service in Ireland
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DOI：
10.1177/1049732307308316
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发表时间：
2007-11-01
影响因子：
3.2
通讯作者：
Quin, Suzanne
中科院分区：
文献类型：
--
作者：
Clarke, Jean;Quin, Suzanne
在这篇文章中，作者介绍了专业护理人员为生命受限的儿童提供儿科姑息治疗的经验。对于这项定性研究，国家儿科姑息治疗需求分析的一部分，作者参与了15个焦点小组访谈，并利用开放式问题的回答来表达专业护理人员的经验，并强调他们护理现实的人性化。这种人性是通过三个主题来阐述的：定义的明确性和参与的复杂性，寻求提供姑息治疗服务，以及提供姑息治疗的情感成本。对这些主题的进一步分析指出，在复杂的决策过程中，与儿童及其父母进行技能和情感互动的工作生活经验。儿科姑息治疗发生在一个环境中，父母承担了很大的负担的照顾和专业人员发现自己在资源不足的服务工作。
In this article the authors present findings on professional carers' experience of providing pediatric palliative care to children with life-limiting conditions. For this qualitative study, part of a national pediatric palliative care needs analysis, the authors engaged in 15 focus group interviews and drew on the responses of open-ended questions to give voice to the experiences of professional carers and to situate the humanity of their caring reality. This humanity is articulated through three themes: clarity of definition and complexity of engagement, seeking to deliver a palliative care service, and the emotional cost of providing palliative care. Further analysis of these themes points to a work-life experience of skilled and emotional engagement with children, and their parents, in complex processes of caregiving and decision making. Pediatric palliative care occurs in an environment where parents shoulder a large burden of the care and professionals find themselves working in underresourced services.