Technology-dependent children and their families: a review.
Technology-dependent children and their families: a review.
复制标题
技术依赖儿童及其家庭：回顾。
DOI：
10.1046/j.1365-2648.2003.02858.x
复制
发表时间：
2004
影响因子：
3.8
通讯作者：
A. Barnard
中科院分区：
文献类型：
--
作者：
K. Wang;A. Barnard
背景
医疗技术和护理的进步使长期依赖医疗和技术支持的儿童能够与家人和社区团聚。让这些儿童重返社会所带来的影响是前所未有的，值得在政策上加以考虑。开始，必须努力了解在家里照顾依赖技术的儿童的现象。
目的
本文的目的是提供一个全面的文献综述照顾技术依赖的儿童生活在家里。
方法
通过使用各种电子数据库的关键词检索进行了审查。这些包括CINAHL，MEDLINE，社会科学索引，社会学摘要，澳大利亚家庭和社会摘要，以及澳大利亚统计局。对发现的文章和书籍进行了共性和差异性检查，提取了重要主题，并对研究方法的强度和后续证据进行了批评。
结果
在本文中，主题相关的技术依赖儿童及其家庭的家庭照顾的阐述和总结。这些是：慢性病和儿童;儿科家庭护理对儿童的影响;依赖技术的儿童及其家庭的独特性;以及父母对儿科家庭护理的经验。
讨论
提出并讨论了与这些儿童及其家庭的社会生活有关的有争议的问题，目的是提高认识，并在主要利益攸关方之间引发进一步的辩论。这些问题包括：家庭意义的改变;家庭动态;社会孤立;为谁节省成本？责任的转移;以及父母与专业人员的关系。
结论
需要在儿科家庭护理的竞技场进行更多的研究，以促进相关政策的制定和实施。
BACKGROUND
Advances in medical technology and nursing care have enabled children who rely on long-term medical and technical support to reunite with their families and community. The impact of discharging these children into the community involves a number of unprecedented social implications that warrant policy consideration. To begin with, an effort must be made to understand the phenomenon of caring for technology-dependent children living at home.
AIM
The aim of this paper is to provide a comprehensive literature review on caring for technology-dependent children living at home.
METHODS
The review was conducted via keyword searches using various electronic databases. These included CINAHL, MEDLINE, Social Science Index, Sociological Abstracts, Australian Family and Society Abstracts, and the Australian Bureau of Statistics. The articles and books found were examined for commonality and difference, significant themes were extracted, and the strength of the research methods and subsequent evidence were critiqued.
FINDINGS
In this paper, themes relating to home care for technology-dependent children and their families are elucidated and summarized. These are: chronic illness and children; the impact of paediatric home care on children; the uniqueness of technology-dependent children and their families; and parents' experience of paediatric home care.
DISCUSSION
Contentious issues, relevant to the social life of these children and their families, are raised and are discussed with the intention of extending awareness and provoking further debate among key stakeholders. These issues include: the changed meaning of home; family dynamics; social isolation; saving costs for whom?; shifts in responsibility; and parent-professional relationships.
CONCLUSION
More research is needed in the arena of paediatric home care, to facilitate relevant policy formation and implementation.
父母的苦恼：在家照顾身体虚弱的孩子。
DOI：
--
发表时间：
1993
期刊：
Journal of pediatric nursing
影响因子：
--
作者：
Leonard,BJ;Brust,JD;Nelson,RP
通讯作者：
Nelson,RP