Patient and Public Involvement in the Coproduction of Knowledge: Reflection on the Analysis of Qualitative Data in a Mental Health Study

Patient and Public Involvement in the Coproduction of Knowledge: Reflection on the Analysis of Qualitative Data in a Mental Health Study
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DOI:
10.1177/1049732312448541
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发表时间:
2012-08-01
影响因子:
3.2
通讯作者:
Edwards, Christine
Edwards, Christine
中科院分区:
医学2区
文献类型:
--
作者:
Gillard, Steve;Simons, Lucy;Edwards, Christine

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患者和公众参与健康研究的情况在国际上日益普及,但参与对研究过程的影响却很难评估。我们描述了心理健康研究项目中的定性数据分析过程,该项目有高水平的心理健康服务使用者和护理人员参与,并批判性地反思了我们如何得出我们的研究结果。非研究背景的团队成员有时会挑战学术惯例,从而导致原本可能缺失的复杂发现。我们如何共同生产知识的一个重要组成部分涉及保留方法上的灵活性,以便团队中的非传统研究声音能够定位和批评传统已知的内容。对“我们是谁”如何告知我们所产生的知识进行深思熟虑和透明的反思是我们调查的一部分。我们的结论是,反思知识(共同)生产是评估患者和公众参与对健康研究影响的有用工具。
Patient and public involvement in health research is increasingly well established internationally, but the impacts of involvement on the research process are hard to evaluate. We describe a process of qualitative data analysis in a mental health research project with a high level of mental health service user and carer involvement, and reflect critically on how we produced our findings. Team members not from research backgrounds sometimes challenged academic conventions, leading to complex findings that would otherwise have been missing. An essential component of how we coproduced knowledge involved retaining methodological flexibility so that nonconventional research voices in the team could situate and critique what was conventionally known. Deliberate and transparent reflection on how "who we are" informed the knowledge we produced was integral to our inquiry. We conclude that reflecting on knowledge (co)production is a useful tool for evaluating the impact of patient and public involvement on health research.