Health-Related Quality of Life Instruments for Adolescents with Chronic Diseases

Health-Related Quality of Life Instruments for Adolescents with Chronic Diseases
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DOI:
10.1007/978-0-387-87687-0_23
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发表时间:
2011-01-01
期刊:
BEHAVIORAL APPROACHES TO CHRONIC DISEASE IN ADOLESCENCE: A GUIDE TO INTEGRATIVE CARE
影响因子:
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通讯作者:
Marciel, Kristen K.
Marciel, Kristen K.
中科院分区:
其他
文献类型:
--
作者:
Quittner, Alexandra L.;Cruz, Ivette;Marciel, Kristen K.

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在过去的二十年中,在定义和衡量与健康相关的生活质量(HRQOL)以及认识到其作为健康结果的重要性方面取得了巨大进展(Palermo 等人,2008 年;Quittner、Davis 和 Modi,2003 年)。 50多年前,世界卫生组织提出了HRQOL的第一个定义,即“身体、心理和社会适应的完整状态,而不仅仅是没有疾病或虚弱”(世界卫生组织[WHO],1947年,第29页)。 HRQOL 的共识定义现已出现,一致认为它是多维的,包括四个核心领域:(1) 疾病状态和身体症状,(2) 功能状态(例如进行日常活动),(3) 心理和情感功能,以及 (4) 社会功能(Hays,2005;Rothman 等,2007)。
Over the past two decades, tremendous progress has been made in defining and measuring health-related quality of life (HRQOL) and in recognizing its importance as a health outcome (Palermo et al., 2008; Quittner, Davis, & Modi, 2003). More than 50 years ago, the World Health Organization proposed the first definition of HRQOL as “a state of complete physical, mental, and social well-being, and not merely the absence of disease or infirmity” (World Health Organization [WHO], 1947, p. 29). A consensus definition of HRQOL has now emerged, with agreement that it is multidimensional and includes four core domains: (1) disease state and physical symptoms, (2) functional status (e.g., performing daily activities), (3) psychological and emotional functioning, and (4) social functioning (Hays, 2005; Rothman et al., 2007).