Autism Spectrum Disorders: Family Demographics, Parental Stress, and Family Quality of Life
Autism Spectrum Disorders: Family Demographics, Parental Stress, and Family Quality of Life
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DOI：
10.1111/jppi.12232
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发表时间：
2018-03-01
影响因子：
1.7
通讯作者：
Hsiao, Yun-Ju
中科院分区：
文献类型：
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作者：
Hsiao, Yun-Ju
背景资料：自闭症谱系障碍（ASD）儿童的家庭面临着持续的挑战，这些挑战可能影响家庭生活的各个方面。为了帮助这些家庭克服ASD的影响，并促进更积极的家庭和儿童结果，需要进行研究，以更好地了解与ASD儿童家庭生活质量相关的变量。具体目标：本文探讨了家庭人口学特征和父母压力对ASD儿童家庭生活质量的影响。方法：样本来自美国西南部一个州的四家自闭症服务提供商，由236名自闭症儿童的父母组成。数据收集使用海滩中心家庭生活质量量表和父母压力量表。调查结果：研究结果表明，父母的性别，婚姻状况，教育，家庭收入，或感知父母的压力是一个预测的ASD儿童的家庭生活质量和家庭收入和父母的压力是两个显着的预测因素时，考虑这些变量在一起。讨论内容：目前的研究结果进一步表明，干预和支持的重要性，以减少父母的压力和收入障碍，并针对每个家庭的独特需求，以提高自闭症儿童家庭的生活质量。
Background: Families of children with autism spectrum disorders (ASD) are confronted with ongoing challenges that can influence various aspects of family life. To assist these families in overcoming the impact of ASD and promote more positive family and child outcomes, research for a better understanding of variables associated with quality of life in families of children with ASD is needed. Specific Aim: This article examined the impact of family demographic characteristics and parental stress on the quality of life in families of children with ASD. Method: The sample was recruited from four autism service providers in a southwestern state in the United States and consisted of 236 parents of children with ASD. Data were collected using the Beach Center Family Quality of Life Scale and the Parental Stress Scale. Findings: Findings showed that parent's gender, marital status, education, family income, or perceived parental stress was a predictor of quality of life in families of children with ASD and that family income and parental stress were two significant predictors when considering these variables together. Discussion: The current findings indicate further evidence for the importance of intervention and support to reduce parental stress and income barriers, and tailor to the unique needs of each individual family so as to promote the quality of life of families of children with ASD.