How accurate are Scottish cancer registration data?

How accurate are Scottish cancer registration data?
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苏格兰癌症注册数据的准确性如何?

DOI:
10.1038/bjc.1994.428
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发表时间:
1994-11
影响因子:
8.8
通讯作者:
--
中科院分区:
医学1区
文献类型:
--
作者:

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为了评估苏格兰癌症登记数据的准确性,对1990年的2,200例登记进行了随机抽样。有2,021例(92%)病例可查阅相关医疗记录。从可用记录中重新提取注册详细信息,并与注册中心中的数据进行比较。在3.5%的病例中发现识别数据项目(姓氏、名字、性别和出生日期)存在差异。大多数都是微不足道的,不会干扰记录链接。诊断时居住地邮政编码的差异率为7.1%(不包括边界变化引起的差异),周年纪念日日期的差异率为11.0%(不包括6周或更短的差异),组织学验证状态的差异率为7.7%,ICD-9位点编码(前三位数字)的差异率为5.4%,ICD-O形态编码的差异率为14.5%(不包括“推断的”形态编码)。总的来说,2.8%的病例出现了严重的差异。因此,在许多方面,苏格兰癌症登记数据显示出高水平的准确性,与报道的进行此类分析的少数其他癌症登记的准确性相比是有利的。
In order to assess the accuracy of Scottish cancer registration data, a random sample of 2,200 registrations, attributed to the year 1990, was generated. Relevant medical records were available for review in 2,021 (92%) cases. Registration details were reabstracted from available records and compared with data in the registry. Discrepancies in identifying items of data (surname, forename, sex and date of birth) were found in 3.5% of cases. Most were trivial and would not disturb record linkage. Discrepancy rates of 7.1% in post code of residence at the time of diagnosis (excluding differences arising through boundary changes), 11.0% in anniversary date (excluding differences of 6 weeks or less), 7.7% in histological verification status, 5.4% in ICD-9 site codes (the first three digits) and 14.5% in ICD-O morphology codes (excluding 'inferred' morphology codes) were recorded. Overall, serious discrepancies were judged to have occurred in 2.8% of cases. In many respects, therefore, Scottish cancer registration data show a high level of accuracy that compares favourably to the reported accuracy of the few other cancer registries undertaking such analyses.