Breast cancer survivorship in a multiethnic sample - Challenges in recruitment and measurement
Breast cancer survivorship in a multiethnic sample - Challenges in recruitment and measurement
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作者：
Ashing-Giwa, KT;Padilla, GV;Kim, J
背景将少数民族纳入癌症相关研究仍然是研究人员的一个重要关切。在这篇文章中，作者提出1）进行多种族生存研究的招募和测量挑战的简要讨论，和2）招募结果和样本特征的健康相关的生活质量研究与乳腺癌幸存者（BCS）的多种族样本。采用病例对照、横断面设计和混合抽样方法。使用不同样本招募和入组的背景模型来指导方案。BCS是从加州癌症监测项目、医院登记处和社区机构招募的。比较了参与率、人口统计学因素和医疗因素。通过种族标准措施的可靠性进行了评估。703名女性参与了研究，包括135名非洲裔美国女性（19%）、206名亚裔美国女性（29%）、183名拉丁裔美国女性（26%）和179名欧洲裔美国女性（26%）。参与受种族，年龄和招募地点的影响。总体而言，非洲裔美国人参与的可能性最小，而欧洲裔美国人参与的可能性最大。非裔美国人和亚裔美国人更有可能拒绝，欧洲裔美国人和拉丁裔美国人更有可能同意参与，欧洲裔美国人和亚裔美国人最有可能在同意后完成调查。各测量指标的信度为0.64-0.91，具有中至优的信度。尽管重要的招聘和测量的挑战，这项研究获得了可接受的参与率和良好的内部一致性的措施。结果表明，实用的文化响应的方法来健康差距的研究。(C)2004年美国癌症协会。
BACKGROUND. The inclusion of ethnic minorities in cancer-related studies continues to be an important concern for researchers. In this article, the authors present 1) a brief discussion of recruitment and measurement challenges in conducting multiethnic survivorship research, and 2) recruitment outcomes and sample characteristics for a health-related quality-of-life study with a multiethnic sample of breast cancer survivors (BCS).METHODS. A case-control, cross-sectional design with mixed sampling methods was used. The Contextual Model for Recruitment and Enrollment of Diverse Samples was used to guide the protocol. BCS were recruited from the California Cancer Surveillance Program, from hospital registries, and from community agencies. Participation rates, demographic factors, and medical factors were compared. The reliability of standard measures by ethnicity was assessed.RESULTS. Seven hundred three women participated, including 135 African-American women (19%), 206 Asian-American women (29%), 183 Latina-American women (26%), and 179 European-American women (26%). Participation was influenced by ethnicity, age, and site of recruitment. Overall, African Americans were least likely to participate, and European Americans most likely to participate. African Americans and Asian Americans were more likely to refuse, European Americans and Latina Americans were more likely to agree to participate, and European Americans and Asian Americans were most likely to complete the survey after consenting. Measures possessed moderate to excellent reliability (0.64-0.91).CONCLUSIONS. Despite important recruitment and measurement challenges, this study obtained acceptable participation rates and good internal consistency of the measures. The results demonstrate the utility of a culturally responsive approach to health disparities research. (C) 2004 American Cancer Society.