Choice in the context of informal care-giving
Choice in the context of informal care-giving
复制标题
DOI：
10.1111/j.1365-2524.2006.00671.x
复制
发表时间：
2007-03-01
影响因子：
2.4
通讯作者：
Glendinning, Caroline
中科院分区：
文献类型：
--
作者：
Arksey, Hilary;Glendinning, Caroline
扩大社会护理服务使用者的选择和控制是当前英国政策的一个核心特征。然而，这些报告对残疾或生病的亲戚、朋友或老年人的非正式照顾者的选择问题却相对较少。为了探讨现实的选择所经历的照顾者，本文件回顾了自1985年以来发表的英文研究有关三种情况下，照顾者可能面临的选择：接受社会服务，进入一个老年人的长期护理，并结合有偿工作和照顾。检索了13个电子数据库，涵盖卫生和社会保健领域。数据库包括：ASSIA; IBSS;社会关怀在线; ISI知识网; Medline; HMIC社会学文摘; INGENTA; ZETOC;和国家研究登记册。搜索策略结合了以下术语：（1）确定负有护理责任的个人;（2）确定接受帮助和支持的人;（3）描述感兴趣的过程（例如选择、决策和自决）。搜索发现了相对较少的相关研究，因此补充了另一个最近的审查结果的实证研究照顾者的选择结合工作和照顾。研究证据表明，照顾者的选择是由两套因素：一个涉及到照顾关系的性质;第二个包括更广泛的组织因素。在目前增加选择的政策建议中，照顾者的选择被忽视，原因有很多。特别是，它建议，照顾者和正式服务提供者之间的关系的基础概念模型的形状照顾者可以提供选择和控制类似的服务用户的程度。特别是，如果照料者行使选择权涉及放弃某些无报酬的照料活动，那么这种选择权可能会产生很大问题。
Extending choice and control for social care service users is a central feature of current English policies. However, these have comparatively little to say about choice in relation to the informal carers of relatives, friends or older people who are disabled or sick. To explore the realities of choice as experienced by carers, the present paper reviews research published in English since 1985 about three situations in which carers are likely to face choices: receiving social services; the entry of an older person to long-term care; and combining paid work and care. Thirteen electronic databases were searched, covering both the health and social care fields. Databases included: ASSIA; IBSS; Social Care Online; ISI Web of Knowledge; Medline; HMIC Sociological Abstracts; INGENTA; ZETOC; and the National Research Register. The search strategy combined terms that: (1) identified individuals with care-giving responsibilities; (2) identified people receiving help and support; and (3) described the process of interest (e.g. choice, decision-making and self-determination). The search identified comparatively few relevant studies, and so was supplemented by the findings from another recent review of empirical research on carers' choices about combining work and care. The research evidence suggests that carers' choices are shaped by two sets of factors: one relates to the nature of the care-giving relationship; and the second consists of wider organisational factors. A number of reasons may explain the invisibility of choice for carers in current policy proposals for increasing choice. In particular, it is suggested that underpinning conceptual models of the relationship between carers and formal service providers shape the extent to which carers can be offered choice and control on similar terms to service users. In particular, the exercise of choice by carers is likely to be highly problematic if it involves relinquishing some unpaid care-giving activities.