Awkward Choreographies from Cancer's Margins: Incommensurabilities of Biographical and Biomedical Knowledge in Sexual and/or Gender Minority Cancer Patients' Treatment

Awkward Choreographies from Cancer's Margins: Incommensurabilities of Biographical and Biomedical Knowledge in Sexual and/or Gender Minority Cancer Patients' Treatment
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DOI:
10.1007/s10912-018-9542-0
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发表时间:
2020-09-01
影响因子:
0.9
通讯作者:
Ristock, Janice
Ristock, Janice
中科院分区:
其他
文献类型:
--
作者:
Bryson, Mary K.;Taylor, Evan T.;Ristock, Janice

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加拿大和美国关于性少数群体和/或性别少数群体的人口研究提供了与乳腺癌和妇科癌症相关的持续健康差异和知识鸿沟的证据。癌症边缘研究调查了性和/或性别边缘性以及与传记和生物医学癌症知识的接触中的不可通约性和即兴发挥的复杂交叉点。该研究探讨了性欲和性别如何交叉构成癌症健康知识的复杂生物政治图谱,这些图谱塑造了知识的获取及其在健康和治疗决策中的动员。对不同群体(n=81)的性少数群体和/或性别少数乳腺癌或妇科癌症患者进行了访谈。我们分析的 LGBQ//T2 癌症患者的叙述详细记录了性少数和/或性别少数癌症患者如何通过持续参与创造性尝试来抵制、阻止和以其他方式管理歧视的可能性以及护理环境中机构消除的可能性,从而打断其癌症治疗决策的原本步调一致的组合。我们的研究结果表明,癌症对 LGBQ//T2 患者提出了要求,要求他们在截然不同且有时不可通约的知识体系中精心设计获取、调动知识和护理的能力。
Canadian and American population-based research concerning sexual and/or gender minority populations provides evidence of persistent breast and gynecologic cancer-related health disparities and knowledge divides. The Cancer's Margins research investigates the complex intersections of sexual and/or gender marginality and incommensurabilities and improvisation in engagements with biographical and biomedical cancer knowledge. The study examines how sexuality and gender are intersectionally constitutive of complex biopolitical mappings of cancer health knowledge that shape knowledge access and its mobilization in health and treatment decision-making. Interviews were conducted with a diverse group (n=81) of sexual and/or gender minority breast or gynecologic cancer patients. The LGBQ//T2 cancer patient narratives we have analyzed document in fine grain detail how it is that sexual and/or gender minority cancer patients punctuate the otherwise lockstep assemblage of their cancer treatment decision-making with a persistent engagement in creative attempts to resist, thwart and otherwise manage the possibility of discrimination and likewise, the probability of institutional erasure in care settings. Our findings illustrate the demands that cancer places on LGBQ//T2 patients to choreograph access to, and mobilization of knowledge and care, across significantly distinct and sometimes incommensurable systems of knowledge.