Information Needs of People With Spinal Cord Injuries
Information Needs of People With Spinal Cord Injuries
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DOI：
10.1080/10790268.2009.11754556
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发表时间：
2009-11-01
影响因子：
1.7
通讯作者：
Johnson, Kurt
中科院分区：
文献类型：
--
作者：
Matter, Becky;Feinberg, Melanie;Johnson, Kurt
背景/目的：确定成人脊髓损伤(SCI)患者的信息需求、互联网接入水平以及当前和首选的信息格式和来源。患有SCI的人有很高的终生风险，会出现医疗并发症和其他继发于他们的伤害的健康状况。许多继发性疾病可以通过适当的自我护理和/或自我管理来预防或减轻。SCI患者在出院后和一生中需要及时、高质量的健康和医疗问题信息，以改善自我护理，最大限度地提高生活质量。方法：作为对SCI患者进行纵向研究的第三个时间点的一部分，进行了一项调查。结果：在277名受访者中，共有80.2%的人报告有互联网接入。目前，受访者最常选择的接收SCI信息的格式是“网页/互联网”。目前最受欢迎的SCI信息来源是“内科医生：SCI专家/康复专家”。受访者表示，他们最需要有关医疗问题的信息。被认定为“白人”且受教育程度较高的人使用互联网的比例明显更高，并将选择网页/互联网列为他们的首选。结论：结果证实，尽管SCI患者更喜欢从SCI专家那里获得SCI信息，但互联网是一个更容易获得和更经常使用的来源。教育程度和种族预测了当前和优先使用互联网获取SCI信息，这表明SCI信息的互联网分布将排除亚群。
Background/Objective: To determine the information needs, level of Internet access, and current and preferred formats and sources of information of adults with spinal cord injuries (SCIs). Individuals with SCIs have a high lifetime risk for medical complications and other health conditions secondary to their injury. Many secondary conditions can be prevented or mitigated through appropriate self-care and/or self-management. People with SCIs need timely, high-quality information about health and medical issues after discharge and throughout their lifetime to improve self-care and maximize quality of life.Methods: A survey was administered as part of the third time point of a longitudinal research study on individuals with SCI.Results: A total of 80.2% of the 277 respondents reported having Internet access. The most frequently selected format used currently and preferred by respondents for receiving SCI information was "Web pages/Internet." The top-ranked current and preferred source of SCI information was from a "Physician: SCI Expert/Rehabilitation Specialist." Respondents reported needing information on medical issues the most. Significantly higher percentages of individuals identified as "white" and with higher education levels had access to the Internet and ranked the selection of Web pages/Internet as their top choice.Conclusions: Results confirm that, although people with SCI prefer to receive SCI information from SCI experts, the Internet is a more accessible and more currently used source. Educational level and race predicted current and preferred use of the Internet for obtaining SCI information, suggesting that Internet distribution of SCI information will exclude subgroups.