The experiences and challenges of informal caregivers: Common themes and differences among whites, blacks, and hispanics
The experiences and challenges of informal caregivers: Common themes and differences among whites, blacks, and hispanics
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DOI：
10.1093/geront/41.6.733
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发表时间：
2001-12-01
期刊：
影响因子：
5.7
通讯作者：
Donelan, K
中科院分区：
文献类型：
--
作者：
Navaie-Waliser, M;Feldman, PH;Donelan, K
目的：这项研究考察了纽约白人、黑人和西班牙裔非正式照顾者在经历和挑战方面的共性和差异。设计和方法：通过电话访谈，随机选择2241户具有代表性的横断面居民。获得了380名符合条件的参与者的完整数据，他们被归类为白人(n=164)、黑人(n=129)和西班牙裔(n=87)。描述性、双变量和多变量分析被用来检验护理强度、报告的提供护理的困难和提供护理的未满足需求方面的差异。结果：超过70%的照顾者没有得到正式照顾者的帮助，尽管超过80%的人已经提供了至少一年的护理，40%的人每周提供这种护理20小时或更长时间。与白人护理者相比，黑人护理者更有可能提供更高强度的护理，报告在护理提供方面有未得到满足的需求，并在成为护理者后经历更多的宗教信仰，但报告在提供护理方面存在困难的可能性较小。与白人照顾者相比，拉美裔照顾者更有可能得到正式照顾者的帮助，并且自成为照顾者以来，他们更有可能经历更多的宗教信仰。影响：尽管非正式照顾者的经历和挑战有许多相似之处，但从不同的家庭照顾者群体中获得洞察力将有助于项目规划者、政策制定者和正式照顾者制定和实施文化敏感的计划和政策，以支持这些照顾者在其不断扩大的角色中的需求。今后的努力还应侧重于探索社区资源，特别是宗教机构在向种族/少数民族照顾者提供外联和支助方面可能发挥的重要作用。
Purpose: This study examined commonalities and differences in the experiences and challenges of White, Black, and Hispanic informal caregivers in New York, NY. Design and Methods: A randomly selected representative cross-section of 2,241 households was contacted through telephone interviews. Complete data were available for 380 eligible participants, who were classified as White (n = 164), Black (n = 129) and Hispanic (n = 87). Descriptive, bivariate, and multivariate analyses were conducted to examine differences in caregiving intensity, reported difficulty with providing care, and having unmet needs with care provision. Results: Over 70% of caregivers had no help from formal caregivers, even though over 80% had been providing care for at least I year, and 40% had been providing this care for 20 or more hr per week. Compared with White caregivers, Black caregivers were more likely to provide higher intensity care, to report having unmet needs with care provision, and to experience increased religiosity since becoming caregivers, but were less likely to report difficulty with providing care. Hispanic caregivers were more likely than White caregivers to have help from formal caregivers and to experience increased religiosity since becoming caregivers. Implications: Although many similarities exist in the experiences and challenges of informal caregivers, gaining insight from different populations of family caregivers would help program planners, policy makers, and formal caregivers to develop and implement culturally sensitive programs and policies that are supportive of the needs of these caregivers in their ever-expanding :roles. Future efforts also should focus on exploring the potentially significant role that community resources, in particular, religious institutions, could play in providing outreach and support to racial/ethnic minority caregivers.