Exploring Parent Experience of Communication About Therapeutic Hypothermia in the Neonatal Intensive Care Unit.
Exploring Parent Experience of Communication About Therapeutic Hypothermia in the Neonatal Intensive Care Unit.
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DOI：
10.1097/anc.0000000000000473
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发表时间：
2018-04
期刊：
影响因子：
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通讯作者：
James C
中科院分区：
文献类型：
--
作者：
Craig AK;Gerwin R;Bainter J;Evans S;James C
The unique communication challenges faced by parents of infants undergoing therapeutic hypothermia have not been well characterized. To develop awareness of communication challenges experienced by families of infants treated with therapeutic hypothermia. Semi-structured interviews were conducted in a group setting with parents matched into groups according to the severity of the infant’s presenting encephalopathy. The interviews were transcribed and coded into principal and additional sub-themes. Thirty adults were interviewed including 15 mothers, 12 fathers, two grandmothers and one grandfather. The 15 infants were between two and 24 months at the time of the interviews. The principal theme of communication included the following three subthemes; transparency, consistency and delivery style. Parents reported a strong desire for improved early and transparent communication about therapeutic hypothermia, particularly during transfer from an outside hospital. Parents also reported a preference for consistent communication and highlighted parental touch of the hypothermic infant, obstetrical nurse to NICU nurse communication and parent and visitor presence in the infant’s room as areas in need of greater communication consistency. Parents valued direct and compassionate communication styles that excluded medical jargon. All providers can implement recommendations for communication to parents of infants treated with therapeutic hypothermia by increasing transparency, developing greater consistency in the communication delivered and employing a direct and compassionate style to improve the parental experience of therapeutic hypothermia. Further investigation is needed into the specific challenges parents face with a lack of transparent communication prior to the transfer of an infant for therapeutic hypothermia.
