Bounded Justice, Inclusion, and the Hyper/Invisibility of Race in Precision Medicine
Bounded Justice, Inclusion, and the Hyper/Invisibility of Race in Precision Medicine
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DOI：
10.1080/15265161.2023.2207515
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发表时间：
2023-05-20
影响因子：
13.4
通讯作者：
Ferryman, Kadija
中科院分区：
文献类型：
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作者：
Ferryman, Kadija
我采取了呼吁更细致入微的参与与种族在生物伦理学通过使用克里里的有限正义的分析，并认为它有助于照亮种族化的过程，或种族的形成，特别是黑人，作为一个辩证的过程，既隐形和超可见性。这种对种族的辩证观点提供了一个透镜，通过它，遗传学和基因组学领域的伦理、法律的和社会影响可以反映出诸如纳入基因组学和生物医学研究等令人担忧的问题。在精准医学中打击或中断种族化可能涉及询问边缘化群体如何在研究过程的各个方面变得不可见或高度可见。将这类问题纳入生物医学研究的包容性努力，可能会导致与边缘化群体的潜在强有力的接触，并可能为利益相关者提供机会，让他们了解种族化可能实时发生的方式，并可能破坏良好的意愿。
I take up the call for a more nuanced engagement with race in bioethics by using Creary's analytic of bounded justice and argue that it helps illuminate processes of racialization, or racial formation, specifically Blackness, as a dialectical processes of both invisibility and hyper-visibility. This dialectical view of race provides a lens through which the ethical, legal, and social implications (ELSI) of genetics and genomics field can reflect on fraught issues such as inclusion in genomic and biomedical research. Countering or interrupting racialization in precision medicine can involve asking how marginalized groups are made invisible or hyper-visible in various aspects of the research process. Incorporating these kinds of questions into biomedical research inclusion efforts could lead to potentially powerful engagements with marginalized groups and could provide the opportunity for stakeholders to engage with the ways that racialization can happen in real-time and might undermine good intentions.