Intersex and Human Rights: The Long View
Intersex and Human Rights: The Long View
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双性人和人权：长远观点
DOI：
10.1007/1-4220-4314-7_4
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发表时间：
2006
期刊：
影响因子：
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通讯作者：
A. Dreger
中科院分区：
文献类型：
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作者：
A. Dreger
这是一篇关于我在1998年发表的一篇文章是如何错误的文章。我希望读者能容忍我，并看到这不是一个自恋或自我吹嘘的练习。相反，这本书试图解释，为什么改变对双性人的治疗方式比我们这些早期双性人改革运动的人想象的要困难得多，可能是因为当时我们几乎没有专职医生，1998年，我们这些鼓吹双性人治疗改革的人对医疗实践的运作方式还很天真。1今天我们知道，中间性的护理标准并不像我们想象的那样简单。因此，尽管我们一开始认为，为了改善对双性人的护理，我们只需要将对双性人的护理与其他医学相结合，我们现在知道，在医疗实践机构中，有一些基本的问题导致了对双性人家庭的不良待遇。因此，解决两性人的待遇问题并不像试图让一头乖戾的大象在一群行为良好的大象中排队。这就像是在脚上抹上肥皂，试图推动一群顽固的大象游行。不过，我想说的是，这种沉重的推动是值得的，是的，改变阴阳人的做法是非常困难的，因为改变任何根深蒂固的做法是非常困难的，这些做法继续依靠自己的惯性能量运行。但是改变阴阳人的做法将会（事实上已经开始）对医疗保健的许多其他领域产生至关重要的有益影响例如，对同性恋患者的护理，以及对出生时患有各种畸形和残疾的儿童的护理。
This is an essay about how an article I published in 1998 was wrong. I hope the reader will bear with me and see this is not an exercise in narcissism or selfflagellation. It is, rather, an attempt to explain why changing the treatment of intersex has turned out to be a much harder job than those of us in the early intersex reform movement imagined it would be.Probably because we had so few allied doctors back then, in 1998 those of us agitating for intersex treatment reform were naïve about the way medical practice works. 1 Today we know that the standard of care for intersex wasn’t the simple anomaly we thought it was. As a consequence, though we started out thinking that to improve the care of people with intersex conditions we would just need to move the care of intersex into line with the rest of medicine, we now know there are some basic problems generalized in the institution of medical practice that contribute to the poor treatment of families dealing with intersex. Fixing the treatment of intersex isn’t, therefore, like trying to get one surly elephant to line up in a parade of otherwise well-behaved elephants. It’s like trying to push a whole parade of stubborn elephants—and trying to do this with soap on your feet. I want to suggest, though, that this heavy lifting—or heavy pushing—is worth it. That yes, it is very hard to change intersex practice, because it’s very hard to change any entrenched practice that continues to run on the energy of its own inertia. But changing the practice of intersex is going to have (and indeed already has started to have) critically useful effects for many other realms of medical care—for example, the care of gay and lesbian patients, and of children born with various anomalies and disabilities.