A methodological reflection on investigating children's voice in qualitative research involving children with severe speech and physical impairments
A methodological reflection on investigating children's voice in qualitative research involving children with severe speech and physical impairments
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DOI：
10.1080/09687599.2021.1933389
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发表时间：
2021-05-21
影响因子：
2.4
通讯作者：
Clarke, Michael
中科院分区：
文献类型：
--
作者：
Ibrahim, Seray;Vasalou, Asimina;Clarke, Michael
在涉及残疾儿童的研究中调查声音是极具挑战性的。很少有研究将声音问题化，以便为残疾儿童设计新技术。我们开始对有严重语言和身体障碍的儿童进行定性实地考察，以激励设计师考虑以儿童为中心的新观点，以概念化新的通信技术。在这篇文章中，我们使用反身性作为一种工具，批判性地审视我们的方法论决策是如何为残疾儿童提供帮助的，以促进以儿童为中心的沟通体验。我们提出了四个考虑因素，可以是有用的研究人员和从业人员进行参与性工作时，涉及残疾儿童。这些是：1.指导数据收集、分析和解释的理论透镜;通过强有力的和突出的想法开发可信的帐户; 3.孩子们的参与方式证明了他们的声音，和; 4。阻碍促进以儿童为中心的账户的方法。有严重语言和身体障碍的儿童很少参与设计支持通信的新技术。研究有严重语言和身体障碍的儿童在他们的交流中表达了什么是重要的，这可能是具有挑战性的。本文探讨了研究人员如何决定他们如何与儿童一起工作的方式。我们通过关注孩子在互动过程中的交流来研究交流。我们的目标是了解孩子们表达了什么对沟通很重要。我们发现，研究人员的信念，使用不同的方法，并观察儿童的参与方式都影响了调查结果。研究结果表明，研究人员必须向其他人清楚影响他们决策的观点和不同数据来源。一些数据收集方法，如拍照，对儿童来说可能不那么有效，因为他们可以专注于研究人员如何看待情况。
Investigating voice in research that involves children with disabilities is highly challenging. Very few studies have problematised voice for the purposes of designing new technologies for and with children who have disabilities. We embarked on qualitative fieldwork with children who have severe speech and physical impairments with the view to motivate designers to consider new child-centred perspectives for conceptualising new communication technologies. In this article, we use reflexivity as a tool to critically examine how empowering our methodological decisions were for children with disabilities, in advancing child-centred accounts of their communication experiences. We propose four considerations that can be useful for researchers and practitioners when undertaking participatory work involving children with disabilities. These are: 1.Theoretical lenses guiding data collection, analysis and interpretation; 2. Developing credible accounts through strong and prominent ideas; 3. Children's ways of participating evidencing their voices, and; 4. Methods hindering the promotion of child centred accounts. Points of interest Children with severe speech and physical impairments are rarely involved in designing new technologies for supporting communication. It can be challenging to study what children with severe speech and physical impairments express as important about their communication. This article examines the ways in which researchers made decisions about how they worked with children. We studied communication by focusing on the child during their interactions. Our goal was to understand what children expressed as important for communication. We found that researcher beliefs, the use of different methods, and observing children's ways of participating all influenced the findings. The findings identify that it is important for researchers to be clear to others about the perspectives and different data sources that influence their decisions. Some data collection methods, such as taking photos, can be less empowering for children as they can focus on how the researcher sees the situation.