Building Community Capacity in Bereavement Support: Lessons Learnt From Bereaved Caregivers
Building Community Capacity in Bereavement Support: Lessons Learnt From Bereaved Caregivers
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DOI：
10.1177/1049909115615568
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发表时间：
2017-04-01
影响因子：
1.9
通讯作者：
Mancini, Vincent
中科院分区：
文献类型：
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作者：
Breen, Lauren J.;Aoun, Samar M.;Mancini, Vincent
背景：大多数丧亲者不需要专家干预，但提供丧亲支持的社区能力建设尚不成熟。虽然家庭护理人员表示需要更多有关丧亲之痛的信息，但几乎没有证据来指导这些信息可能包含的内容。目的：该研究的目的是通过确定因姑息治疗中预期死亡而失去亲人的人对其他人的建议，从而为丧亲者提供支持。设计：四家殡葬服务提供者向 6 至 24 个月前使用过其服务的前客户发布了一份调查问卷，678 名丧亲者做出了回应。背景/参与者： 本研究的样本量包括 265 名亲属使用过姑息治疗服务的丧亲者。 测量：调查问卷包括 82 个有关护理、丧亲支持、当前与丧亲相关的痛苦的问题，以及 2 个有关丧亲之痛的开放式问题，其中一个是关于他们向处于相同情况的其他人提供的建议。结果：接受姑息治疗的人的家庭护理人员 (n = 140) 回答了 关于给他人建议的开放式问题。开放内容分析得出了三个主题：丧亲准备、利用社交网络和处理悲伤的策略。结论：可以利用丧亲家庭照顾者的经验知识来推进丧亲护理策略的制定，以造福社区。这些回应可以纳入信息手册、海报和其他社区教育途径，以提高姑息治疗丧亲志愿者和更广泛社区的技能，从而使丧亲家庭护理人员得到最好的支持。
Background: Most bereaved people do not require specialist intervention, yet building community capacity in providing bereavement support is underdeveloped. While family caregivers indicate a need for more information about bereavement, there is little evidence to guide what this information might contain.Objective: The study's purpose was to inform bereavement support by determining the advice people bereaved through expected deaths in palliative care have for others in that situation.Design: Four funeral providers posted a questionnaire to previous clients who had used their services 6 to 24 months prior and 678 bereaved people responded.Setting/Participants: The sample size for this study comprised 265 bereaved people whose relative used palliative care services.Measurements: The questionnaire comprised 82 questions about caregiving, bereavement support, current bereavement-related distress, and 2 open-ended questions concerning their bereavement, one of them on advice they have to other people in the same situation.Results: Family caregivers (n = 140) of people who received palliative care responded to the open-ended question about advice for others. An open content analysis yielded 3 themespreparations for bereavement, utilizing social networks, and strategies for dealing with grief.Conclusions: Bereaved family caregivers' experiential knowledge can be harnessed to progress the development of bereavement care strategies for the good of the community. These responses could be incorporated into information brochures, posters, and other community education avenues in order to upskill palliative care bereavement volunteers and the wider community so that bereaved family caregivers are best supported.