Misfires, Missed Data, Misaligned Treatment: Disconnects in Collaborative Treatment of Eating Disorders
Misfires, Missed Data, Misaligned Treatment: Disconnects in Collaborative Treatment of Eating Disorders
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失误、数据缺失、治疗不一致：饮食失调协作治疗中的脱节
DOI：
10.1145/3449105
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发表时间：
2021
影响因子：
--
通讯作者：
Baumer, Eric P.
中科院分区：
文献类型：
--
作者：
Taylor, Lauren C.;Belan, Kelsie;De Choudhury, Munmun;Baumer, Eric P.
技术与我们的健康和健康有着重要的关系，在过去的二十年里，技术被用作支持自我管理目标以及治疗团队之间的协作的辅助工具。然而，当饮食障碍(ED)等慢性疾病在制度化护理环境之外进行管理时，设计有效的技术来支持治疗协作需要我们了解患者、临床医生和支持网络之间的关系。我们对9名ED患者和10名临床医生进行了深入的、半结构化的访谈，通过合作努力、技术使用和潜在危害的镜头来了解ED的旅程。基于我们对这19个访谈的分析，我们提出了关于协作ED治疗过程中的各种潜在脱节的新发现，脱节的原因包括临床医生之间、治疗重点之间、追踪偏好之间、支持网络内的脱节以及住院患者自身的身份认同脱节。我们的发现突显了这些不同的脱节是如何伴随而来的，差距可能源于不同利益相关者在ED之旅中缺乏合作。我们还确定了通过技术调解人在这些脱节问题上促进合作的方法。
Technology bears important relationships to our health and wellness and has been utilized over the past two decades as an aid to support both self-management goals as well as collaboration among treatment teams.However, when chronic illnesses such as eating disorders (ED) are managed outside of institutionalized care settings, designing effective technology to support collaboration in treatment necessitates that we understand the relationships between patients, clinicians, and support networks. We conducted in-depth, semi-structured, interviews with 9 ED patients and 10 clinicians to understand the ED journey through the lens of collaborative efforts, technology use, and potential detriments. Based on our analysis of these 19 interviews, we present novel findings on various underlying disconnects within the collaborative ED treatment process disconnects among clinicians, between treatment foci, among preferences in tracking, within support networks, and inpatients' own identities. Our findings highlight how these various disconnects are concomitant with and gaps can stem from a lack of collaboration between different stakeholders in the ED journey. We also identify methods of facilitating collaboration in these disconnects through technological mediators.