Family empowerment and quality of life of parents raising children with Developmental Disabilities in 78 Japanese families
Family empowerment and quality of life of parents raising children with Developmental Disabilities in 78 Japanese families
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DOI：
10.1016/j.ijnss.2016.12.004
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发表时间：
2017-01-01
影响因子：
3.8
通讯作者：
Fujioka, Hiroshi
中科院分区：
文献类型：
--
作者：
Wakimizu, Rie;Yamaguchi, Keiko;Fujioka, Hiroshi
目标：这些儿童的家庭在诊断时和诊断后都经历着痛苦。当务之急是了解家庭赋权、家庭功能和家庭成员的生活质量 (QoL)，并有效地支持这些日本家庭。本研究的目的是评估有 DD 儿童的家庭的实际状况，并探讨与家庭赋权和父母生活质量相关的因素。 方法：我们对日本首都地区 78 个有 DD 儿童的家庭的 93 名家长（78 名母亲，15 名父亲）进行了调查。我们使用以下工具的日本版本评估了两个主要结果：家庭赋权量表 (FES)、世界卫生组织生活质量 26 (WHOQOL26) 和其他六个结果。进行相关分析和多元回归分析。结果：不用药、配合育儿、发展支持中心协助、解决育儿相关问题、解决问题得分越高，FES得分越高。 WHOQOL26 得分较高与全职家庭主妇、自尊心较高、无发展支持、广泛的情感支持网络、问题解决和角色功能得分较高、情感反应和一般功能得分较低有关。结论：我们发现，在日本养育 DD 儿童的父母的家庭赋权和生活质量受到家庭功能和其他家庭属性的各个分量表的影响。未来应研究改善家庭赋权和生活质量的有效干预措施。 (C) 2016年中华护理学会。由 Elsevier B.V 制作和托管。这是一篇遵循 CC BY-NC-ND 许可证 (http://creativecommons.org/licenses/by-nc-nd/4.0/) 的开放获取文章。
Objectives: The families of these children experience distress both at the time of diagnosis and afterward. A top priority is to understand family empowerment, family function, and family members' quality of life (QoL) and to effectively support these families in Japan. The objective of this study was to assess the actual conditions of families living with children having DDs and to explore the factors associated with family empowerment and parents' QoL.Methods: We surveyed ninety-three parents (78 mothers, 15 fathers) from 78 families which lived with children with DDs in the capital region of Japan. We assessed two main outcomes using the Japanese versions of the following instruments: Family Empowerment Scale (FES), World Health Organization Quality of Life 26 (WHOQOL26), and other six outcomes. Correlation and multiple regression analyses were conducted.Results: No medication, cooperation with child rearing, assistance from a developmental support center, solved problems related to child rearing, and higher scores in Problem Solving contributed to higher FES scores. Higher WHOQOL26 scores were related to being a full-time housewife, higher self-esteem, no developmental support, a broad emotional support network, higher scores in Problem Solving and Role Function, and lower scores in Affective Reaction and General Function.Conclusions: We revealed that family empowerment and QoL of parents rearing children with DDs in Japan were affected by various subscales of family function and other family attributes. Effective interventions for improving family empowerment and QoL should be researched in the future. (C) 2016 Chinese Nursing Association. Production and hosting by Elsevier B.V. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).