How Content Authored by People with Dementia Affects Attitudes towards Dementia

How Content Authored by People with Dementia Affects Attitudes towards Dementia
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痴呆症患者创作的内容如何影响人们对痴呆症的态度

DOI:
10.1145/3479542
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发表时间:
2021
影响因子:
--
通讯作者:
Ross III, Warren
Ross III, Warren
中科院分区:
--
文献类型:
--
作者:
Lazar, Amanda;Brewer, Robin N.;Kacorri, Hernisa;Hong, Jonggi;Punzalan, Mary Nicole;Mahathir, Maisarah;Vander Hyde, Olivia;Ross III, Warren

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消极态度会影响痴呆症等污名化病症的经历,从影响社会关系到影响采用技术的意愿。因此,态度改变被认为是改善遭受耻辱的人们生活的一种手段。尽管社交媒体被认为是一种可扩展的方法,但尚未研究如何最好地设计或部署社交媒体来针对痴呆症的态度和理解。通过对 123 名本科生进行混合方法设计,我们研究了接触痴呆症相关媒体(包括痴呆症患者制作的内容)的影响。我们选择本科生作为我们干预的目标,因为他们代表了将与痴呆症患者一起工作和互动的下一代。我们的分析描述了两周内人们对病情的态度和理解的变化。我们在定性分析中发现的对痴呆症理解的转变并未被我们选择用来评估对痴呆症理解的工具捕获。虽然所有干预措施和对照组的积极态度和整体态度都有小幅改善,但我们观察到消极态度的不同模式,其中痴呆症患者产生的内容转录显着减少了消极态度。讨论提出了支持痴呆症患者作为内容制作者的意义,通过利用线索和互动媒体的研究,以最能影响态度和理解的方式这样做,并支持学生改变对痴呆症患者的看法。
Negative attitudes shape experiences with stigmatized conditions such as dementia, from affecting social relationships to influencing willingness to adopt technology. Consequently, attitudinal change has been identified as one lever to improve life for people with stigmatized conditions. Though recognized as a scaleable approach, social media has not been studied in terms of how it should best be designed or deployed to target attitudes and understanding of dementia. Through a mixed methods design with 123 undergraduate college students, we study the effect of being exposed to dementia-related media, including content produced by people with dementia. We selected undergraduate college students as the target of our intervention, as they represent the next generation that will work and interact with individuals with dementia. Our analysis describes changes over the period of two weeks in attitudes and understanding of the condition. The shifts in understanding of dementia that we found in our qualitative analysis were not captured by the instrument we selected to assess understanding of dementia. While small improvements in positive and overall attitudes were seen across all interventions and the control, we observe a different pattern with negative attitudes, where transcriptions of content produced by people with dementia significantly reduced negative attitudes. The discussion presents implications for supporting people with dementia as content producers, doing so in ways that best affect attitudes and understanding by drawing on research on cues and interactive media, and supporting students in changing their perspectives towards people with dementia.
DOI: 10.1177/1533317520939773
发表时间: 2020
期刊: American Journal of Alzheimer's Disease and Other Dementias
影响因子: --
作者:
Rachel A. Sluis;Daniel Angus;Janet Wiles;A. Back;T. Gibson;J. Liddle;Peter Worthy;D. Copland;A. Angwin
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DOI: --
发表时间: 2019
期刊: International ACM SIGACCESS Conference on Computers and Accessibility
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DOI: --
发表时间: 2015
期刊: Dementia
影响因子: --
作者:
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通讯作者: Kate Swaffer
DOI: --
发表时间: 2016
期刊:
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作者:
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DOI: 10.1007/978-3-030-39540-7_4
发表时间: 2020
期刊: 2018 First International Conference on Artificial Intelligence for Industries (AI4I)
影响因子: --
作者:
Christine Liebrecht;C. V. Hooijdonk
通讯作者: C. V. Hooijdonk