Return of Individual Research Results: Participant Perspectives in a Longitudinal Community-Based Sample.
Return of Individual Research Results: Participant Perspectives in a Longitudinal Community-Based Sample.
复制标题
DOI：
10.1177/15562646231173745
复制
发表时间：
2023-07
影响因子：
1.3
通讯作者：
Elliott, Amy J.
中科院分区：
文献类型：
--
作者：
Angal, Jyoti;Brockevelt, Barbara;Caraway, S. Jean;Kenyon, DenYelle B.;Ziegler, Katherine;Elliott, Amy J.
关键词：
The last decade has witnessed growing calls for the return of individual research results. Prior work in genetic studies has shown that individual, contextual, and cultural factors influence participants’ preferences for individual research results. There is a gap in knowledge about participants’ views about other types of results, specifically those lacking clinical significance. This study investigates the perspectives of 1587 mothers enrolled in the Northern Plains Environmental Influences on Child Health Outcomes (ECHO) Program. Participants were presented with hypothetical scenarios to determine their perceived value of individual research results based on result type and the ability to interpret them within a normative context. Irrespective of the result type, participants attributed higher perceived value to results that were well understood than results of unknown significance.
登录
查看更多内容
影响因子：
3.2
作者：
Garrison, Nanibaa' A.;Barton, Krysta S.;Carroll, Stephanie Russo
通讯作者：
Carroll, Stephanie Russo
影响因子：
3.7
作者：
Hiratsuka, Vanessa Y.;Beans, Julie A.;Spicer, Paul G.
通讯作者：
Spicer, Paul G.
影响因子：
13.4
作者：
Murphy, Juli;Scott, Joan;Hudson, Kathy
通讯作者：
Hudson, Kathy
影响因子：
9.8
作者：
Lewis, Katie L.;Turbitt, Erin;Biesecker, Leslie G.
通讯作者：
Biesecker, Leslie G.
影响因子：
1.7
作者：
Sabatello, Maya;Zhang, Yuan;Appelbaum, Paul S.
通讯作者：
Appelbaum, Paul S.