The communication challenges faced in adopting a palliative care approach in advanced dementia

The communication challenges faced in adopting a palliative care approach in advanced dementia
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DOI:
10.1111/j.1440-172x.2009.01795.x
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发表时间:
2009-10-01
影响因子:
1.9
通讯作者:
Easterbrook, Sally
Easterbrook, Sally
中科院分区:
医学3区
文献类型:
--
作者:
Johnson, Amanda;Chang, Esther;Easterbrook, Sally

文献摘要

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本文讨论了澳大利亚一项旨在了解晚期痴呆症患者需求的研究结果的一个方面。具体来说,本文重点关注可能阻碍对住院老年护理机构 (RACF) 中的晚期痴呆症患者实施姑息治疗方法的沟通问题。进行了由 34 名参与者组成的 6 个焦点小组和 24 次半结构化访谈。参与者来自姑息治疗专业工作人员、姑息治疗志愿者、地区卫生服务机构指定的老年人或痴呆症专家、全科医生、RACF 工作人员和家庭护理人员。研究结果表明,参与者发现的沟通问题是影响他们采用姑息治疗方法来照顾晚期痴呆症患者的能力的一个重要因素。研究结果支持 RACF 的主要护理提供者之间需要进行教育、技能发展和建立联系,以确保为患有晚期痴呆症的居民及其家人提供“最佳实践”姑息治疗。
This paper discusses one aspect from the findings of an Australian study aimed at understanding the needs of people with advanced dementia. Specifically, this paper focuses on the communication issues that might potentially inhibit the implementation of a palliative care approach for a person with advanced dementia in a residential aged care facility (RACF). Six focus groups consisting of 34 participants and 24 semistructured interviews were conducted. Participants were drawn from palliative care specialty staff, palliative care volunteers, designated aged or dementia specialist staff from an area health service, general practitioners, RACF staff and family carers. The findings show communication issues identified by the participants were a significant factor impacting on their capacity to adopt a palliative care approach in caring for people with advanced dementia. The findings support the need for education, skill development and networking to occur among the key providers of care in RACFs to ensure the provision of 'best practice' palliative care to residents with advanced dementia and their families.