No one listens to me, nobody believes me: Self management and the experience of living with encephalitis
No one listens to me, nobody believes me: Self management and the experience of living with encephalitis
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DOI：
10.1016/j.socscimed.2010.04.011
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发表时间：
2010-07-01
影响因子：
5.4
通讯作者：
Easton, Ava
中科院分区：
文献类型：
--
作者：
Atkin, Karl;Stapley, Sally;Easton, Ava
在过去的二十年里，人们对慢性病的个人经历产生了相当大的兴趣。除了医学社会学更成熟的关注，最近的政策反映了对个人如何管理他们的病情的兴趣。使用材料进行定性访谈，23个人在英国，本文探讨了一个人的经验，脑炎后，作为一种探索的潜在价值，目前的政策措施与自我管理。我们的研究结果表明，个人的疾病经验成为嵌入在有条件的接受来自并通过他们的社会关系持续。这引起了一个根本的政策紧张：目前的自我管理策略的目的是帮助个人更好地科普疾病或与他们的疾病经验是实现的背景下？我们的结论是，政策需要质疑它是如何“想象”长期存在的条件，而不求助于应对和调整的一般概念。反过来，这意味着采用一种工具性更少、更符合实际情况的自我管理方法。(C)2010爱思唯尔有限公司保留所有权利。
Over the past twenty years, there has been considerable interest in individuals' experience of chronic illness. In addition to the more established concerns of medical sociology, recent policy reflects an interest in how individuals manage their condition. Using material from qualitative interviews with 23 individuals carried out in the United Kingdom, this paper examines a person's experience following encephalitis, as a way of exploring the potential value of current policy initiatives associated with self-management. Our findings suggest that individuals' illness experiences become embedded in conditional acceptance derived from and sustained through their social relationships. This raises a fundamental policy tension: is the purpose of current self-management strategies to help individuals cope better with illness or with the context in which their illness experience is realised? We conclude that policy needs to question how it 'imagines' long-standing conditions, without recourse to generalised notions of coping and adjustment. This, in turn, means adapting a less instrumental and more contextualised approach to self-management. (C) 2010 Elsevier Ltd. All rights reserved.