Strategies to Understand What Matters to Advanced Cancer Patients in Advance Care Planning: A Qualitative Study Using the Lifeline Interview Method

Strategies to Understand What Matters to Advanced Cancer Patients in Advance Care Planning: A Qualitative Study Using the Lifeline Interview Method
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了解晚期癌症患者在预先护理计划中重要的策略:使用生命线访谈法的定性研究

DOI:
10.1097/njh.0000000000000866
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发表时间:
2022
期刊:
Journal of Hospice & Palliative Nursing
影响因子:
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通讯作者:
Nin Kazuko
Nin Kazuko
中科院分区:
--
文献类型:
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作者:
Takenouchi Sayaka;Chikada Ai;Mori Masanori;Tamura Keiko;Nin Kazuko

文献摘要

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对于卫生保健提供者应该如何进行预先护理计划,以确定患有严重疾病的东亚患者的价值,人们知之甚少。本研究旨在探讨来自东亚文化的晚期癌症患者是否以及如何在护士使用生命线访谈方法使患者反思他们的生活轨迹时表达他们的价值观和优先事项,以及它是否可以弥合提前护理计划的讨论。从11例晚期肺癌患者的个人半结构化访谈中获得的数据采用定性内容分析进行分析。研究确定了七个主要主题:(1)维持日常生活的治疗和基本要素,(2)关于做“我自己”的信念和支持,(3)对身体状况的情绪起伏,(4)应对能力,(5)我现在想做什么来实现我的目标,(6)为生活带来希望的目标,(7)临终决策的愿望和偏好。结果表明,生命线访谈法是护士和其他卫生保健专业人员了解患者价值观和优先事项的绝佳手段。此外,它连接了预先护理计划讨论,以反映在未来姑息治疗中对患者重要的事情。
Little is known about how health care providers should conduct advance care planning to identify the values of East Asian patients who have serious illnesses. This study aims to explore whether and how patients from an East Asian culture and with advanced cancer express their values and priorities when nurses utilize the lifeline interview method to enable patients to reflect on their life trajectories and if it can bridge advance care planning discussions. Data obtained from individual, semistructured interviews of 11 patients with advanced lung cancer were analyzed using qualitative content analysis. Seven main themes were identified:(1) treatment and essential elements to maintaining everyday life,(2) beliefs regarding and support for being “myself”,(3) emotional ups and downs in response to physical condition,(4) competency to cope,(5) what I want to do “now” to achieve my goals,(6) goals that bring hope for life, and (7) wishes and preferences for end-of-life decision-making. Results suggest that the lifeline interview method is an excellent means for nurses and other health care professionals to elicit patients' values and priorities. Moreover, it bridges advance care planning discussions to reflect on what matters to patients in future palliative care.