Are good intentions good enough? Informed consent without trained interpreters.

Are good intentions good enough? Informed consent without trained interpreters.
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DOI:
10.1007/s11606-007-0136-1
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发表时间:
2007-05
影响因子:
5.7
通讯作者:
de Voogd, Katherine B.
de Voogd, Katherine B.
中科院分区:
医学2区
文献类型:
--
作者:
Hunt, Linda M.;de Voogd, Katherine B.

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在没有经过培训的口译员的情况下,检查知情同意过程。对于英语水平有限(LEP)的患者来说,确保患者充分理解知情同意书尤其具有挑战性。虽然美国法律要求为LEP患者提供合格的翻译,但这种服务通常不可用。定性数据收集在8个产前遗传学诊所在得克萨斯州,包括采访和观察16名临床医生,和30名拉丁美洲患者。使用内容分析技术,我们检查是否知情同意的基本标准(自愿性,讨论的替代品,足够的信息,和能力)是明显的,为这些患者中的每一个,对比LEP患者与患者不需要翻译。我们目前的情况下,与这些标准的困难的例子,并比较知情同意分数的磋商需要解释和那些没有。我们描述了与使用未经训练的口译员或依赖临床医生自己有限的西班牙语有关的多种沟通问题。这些LEP患者似乎在我们检查的每个标准中始终处于不利地位,并且在跨越语言障碍的咨询中,知情同意分数明显较低。在缺乏足够的西班牙语翻译的情况下,不确定这些LEP患者是否获得了确保他们真正知情所需的信息质量和内容。我们提供了一些低成本的实践建议,可能会减轻这些问题,并提高语言翻译的质量,这是必不可少的,以确保知情选择的LEP患者的医疗保健。
To examine the informed consent process when trained language interpreters are unavailable. Ensuring sufficient patient understanding for informed consent is especially challenging for patients with Limited English Proficiency (LEP). While US law requires provision of competent translation for LEP patients, such services are commonly unavailable. Qualitative data was collected in 8 prenatal genetics clinics in Texas, including interviews and observations with 16 clinicians, and 30 Latina patients. Using content analysis techniques, we examined whether the basic criteria for informed consent (voluntariness, discussion of alternatives, adequate information, and competence) were evident for each of these patients, contrasting LEP patients with patients not needing an interpreter. We present case examples of difficulties related to each of these criteria, and compare informed consent scores for consultations requiring interpretation and those which did not. We describe multiple communication problems related to the use of untrained interpreters, or reliance on clinicians’ own limited Spanish. These LEP patients appear to be consistently disadvantaged in each of the criteria we examined, and informed consent scores were notably lower for consultations which occurred across a language barrier. In the absence of adequate Spanish interpretation, it was uncertain whether these LEP patients were provided the quality and content of information needed to assure that they are genuinely informed. We offer some low-cost practice suggestions that might mitigate these problems, and improve the quality of language interpretation, which is essential to assuring informed choice in health care for LEP patients.
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