Research Priorities in Pediatric Palliative Care
Research Priorities in Pediatric Palliative Care
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DOI：
10.1016/j.jpeds.2015.05.002
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发表时间：
2015-08-01
影响因子：
5.1
通讯作者：
Kane, Javier R.
中科院分区：
文献类型：
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作者：
Baker, Justin N.;Levine, Deena R.;Kane, Javier R.
目的综合广泛的儿科姑息治疗（PPC）的临床医生和家长的观点，制定一个共识的PPC研究agenda.Study design 4轮修改后的德尔菲在线调查PPC专家和家长的儿童谁收到PPC的优先次序。在第一轮中，研究优先事项是自发产生的。然后，第2轮和第3轮作为综合优先事项的衔接轮。在第4轮，参与者被要求排名的研究优先事项，已达到至少80% consensus.Results共3093概念自发产生的170名专家和72名家长在第1轮（65.8%的响应率[RR]）。这些概念按主题分为78个优先事项，并在第二轮评级中重新分发（n = 130; RR 53.7%）。第3轮实现了响应稳定性，31个共识优先级在模式的10%内振荡（n = 98; 75.4%RR）。第4轮的结果是一致认可的20个研究重点，这是主题分组决策，护理协调，症状管理，质量改进，和education.Conclusions这个修改后的德尔菲调查专业和家长的共识，以确定卓越的PPC研究的优先事项。对这些优先事项的关注可能有助于将资源和努力引向建立形成性证据基础。调查PPC实施方法和结果可以帮助提高儿童和家庭护理服务的质量。
Objective To synthesize the perspectives of a broad range of pediatric palliative care (PPC) clinicians and parents, to formulate a consensus on prioritization of the PPC research agenda.Study design A 4-round modified Delphi online survey was administered to PPC experts and to parents of children who had received PPC. In round 1, research priorities were generated spontaneously. Rounds 2 and 3 then served as convergence rounds to synthesize priorities. In round 4, participants were asked to rank the research priorities that had reached at least 80% consensus.Results A total of 3093 concepts were spontaneously generated by 170 experts and 72 parents in round 1 (65.8% response rate [RR]). These concepts were thematically organized into 78 priorities and recirculated for round 2 ratings (n = 130; 53.7% RR). Round 3 achieved response stability, with 31 consensus priorities oscillating within 10% of the mode (n = 98; 75.4% RR). Round 4 resulted in consensus recognition of 20 research priorities, which were thematically grouped as decision making, care coordination, symptom management, quality improvement, and education.Conclusions This modified Delphi survey used professional and parental consensus to identify preeminent PPC research priorities. Attentiveness to these priorities may help direct resources and efforts toward building a formative evidence base. Investigating PPC implementation approaches and outcomes can help improve the quality of care services for children and families.