We are talking, but are they listening? Communication patterns in families with a history of breast/ovarian cancer (HBOC)
We are talking, but are they listening? Communication patterns in families with a history of breast/ovarian cancer (HBOC)
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DOI：
10.1002/pon.745
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发表时间：
2004-05-01
期刊：
影响因子：
3.6
通讯作者：
Eeles, R
中科院分区：
文献类型：
--
作者：
Kenen, R;Ardern-Jones, A;Eeles, R
本研究探讨了由于乳腺癌和/或卵巢癌家族史而到癌症遗传风险诊所就诊的健康妇女的家庭中，家庭沟通模式和家庭脚本如何影响遗传信息的传播和基因遗传感受的分享。家庭脚本是一套期望、信念和规范，赋予互动模式意义，连接世代并为行动提供指导。2000年1月至6月，我们在英国一家主要的临床和研究癌症中心进行了一项探索性质的研究，该研究得到了医院临床研究和伦理委员会的批准。对首次来到癌症遗传风险诊所的女性进行了21次半结构化的深度访谈，并辅以5个月的参与者观察。我们确定了几种沟通模式：开放和支持；直接屏蔽，间接屏蔽，自我审查和使用第三方。一些家庭成员分享了他们的感受，并讨论了避免患乳腺癌或卵巢癌的方法；其他人传播信息或只是谈论乳腺癌和卵巢癌的遗传易感性属于违反脚本的类别；还有一些人试图重新协商他们的家庭剧本。版权所有：John Wiley Sons， Ltd。
This study explores how family communication patterns and family scripts influence the dissemination of genetic information and the sharing of feelings about genetic inheritance in families of healthy women who have attended a cancer genetics risk clinic because of their family history of breast and/or ovarian cancer. Family scripts are sets of expectations, beliefs, and norms that assign meaning to patterns of interaction, connect generations and provide guidance for action. We conducted an exploratory, qualitative study at a major clinical and research cancer center in the United Kingdom from January through June 2000 approved by the hospital clinical research and ethics committees. Twenty-one semi-structured, in-depth interviews were conducted using a purposive sample of women coming to the cancer genetics risk clinic for the first time, supplemented by 5 months of participant observation. We identified several communication patterns: open and supportive; directly blocked, indirectly blocked, self-censored and use of third parties. Some family members shared their feelings and discussed ways of trying to avoid developing breast or ovarian cancer; for others disseminating information or just talking about inherited susceptibility for breast and, or ovarian cancer fell into the script violation category; still others tried to renegotiate their family scripts. Copyright (C) 2003 John Wiley Sons, Ltd.