CBTRUS Statistical Report: Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 20052009

CBTRUS Statistical Report: Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 20052009
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DOI:
10.1093/neuonc/nos218
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发表时间:
2012-11-01
期刊:
影响因子:
15.9
通讯作者:
Kruchko, Carol
Kruchko, Carol
中科院分区:
医学1区
文献类型:
--
作者:
Dolecek, Therese A.;Propp, Jennifer M.;Kruchko, Carol

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背景美国中央脑肿瘤登记处(CBTRUS)是一个独特的专业研究组织,专门致力于提供美国基于人群的原发性脑和中枢神经系统肿瘤的优质统计数据。CBTRUS目前是美国唯一一个与公共监督组织国家中央登记计划(NPCR)合作的基于人口的特定地点登记处,并根据特别协议直接接收数据。该协议允许通过NPCR-CSS提交规范机制转移数据,1该系统用于收集1992年公法102-515《癌症登记修订法案》规定的中央(州)癌症数据。2 CBTRUS将NPCR数据与SEER项目3的数据相结合,SEER项目3是20世纪70年代初为国家癌症监测而建立的。与这些顶级监测组织合作,使CBTRUS能够报告有关脑和中枢神经系统肿瘤的高质量数据,这些数据对其所服务的社区有用。
BackgroundThe Central Brain Tumor Registry of the United States (CBTRUS) is a unique professional research organization that focuses exclusively on providing quality statistical data on population-based primary brain and CNS incident tumors in the United States. CBTRUS is currently the only population-based site-specific registry in the United States that works in partnership with a public surveillance organization, the National Program of Central Registries (NPCR), and from which data are directly received under a special agreement. This agreement permits transfer of data through the NPCR-CSS Submission Specifications mechanism, 1 the system utilized for collection of central (state) cancer data as mandated in 1992 by Public Law 102-515, the Cancer Registries Amendment Act. 2 CBTRUS combines the NPCR data with data from the SEER program 3 which was established for national cancer surveillance in the early 1970s. Working with these premier surveillance organizations enables CBTRUS to report high quality data on brain and CNS tumors that are useful to the communities it serves.