Conceptualization and measurement of family outcomes associated with families of individuals with intellectual disabilities.
Conceptualization and measurement of family outcomes associated with families of individuals with intellectual disabilities.
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与智障人士家庭相关的家庭结果的概念化和衡量。
DOI：
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发表时间：
2007
期刊：
影响因子：
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通讯作者：
Kathleen B. Kyzar
中科院分区：
文献类型：
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作者：
A. Turnbull;J. Summers;Suk;Kathleen B. Kyzar
这项审查的目的是：(A)记录与拥有智力残疾成员有关的家庭结果概念化和衡量的现状，并(B)确定家庭研究在多大程度上侧重于内部家庭特征，而不是外部家庭支助。评审者收集了28篇文章，在标题中使用了幸福、适应、家庭功能或家庭生活质量等术语。我们的分析结果是一组中的幸福、适应和家庭功能文章与第二组中的家庭生活质量文章之间的比较。这两组人都缺乏明确的概念定义、理论和随机/代表性样本。这些文章过分强调母亲的参与，并倾向于报告代表整个家庭的单个家庭成员的得分。这两个群体之间的两个主要差异是，家庭生活质量研究有一种趋势，即以概念框架为基础，并侧重于新工具的开发。并对未来的研究方向提出了建议。
The purpose of this review is to (a) document the current status of conceptualizing and measuring family outcomes related to having a member with an intellectual disability and (b) determine the extent to which family research focuses on internal family characteristics as contrasted to external family support. The reviewers collected 28 articles using the terms well-being, adaptation, family functioning, or family quality of life in the title. Results of our analyses are presented as a comparison between well-being, adaptation, and family functioning articles in one group and family quality of life articles in a second group. Both groups lacked explicit conceptual definitions, theory, and random/representative samples. The articles placed an undue emphasis on maternal participation, and tended to report a single family member score as representative of the whole family. Two major differences between the groups was a tendency for family quality of life studies to be grounded in conceptual frameworks and focus on new instrument development. Recommendations for future research directions are included.