Patients, family caregivers, and patient navigators: a partnership approach.
Patients, family caregivers, and patient navigators: a partnership approach.
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DOI：
10.1002/cncr.26263
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发表时间：
2011-08-01
期刊：
影响因子：
6.2
通讯作者：
Hare, Martha
中科院分区：
文献类型：
--
作者：
Palos, Guadalupe R;Hare, Martha
背景：导航服务可以通过在患者、家属/照顾者和导航员之间建立伙伴关系来加强。让患者的家庭或社会网络参与到导航过程中，将允许患者导航员花更多的时间和资源来帮助那些没有家人和朋友支持的患者。伙伴关系方法是将患者现有的社会支持和网络的力量与导航服务的提供相结合而发展起来的。方法：为了开发这种新方法，在美国癌症协会的国家领导峰会上召集了家庭和护理人员工作组。由于个人对家庭和照顾者问题的兴趣、研究或经验，他们被要求在这个小组中服务。结果：到峰会结束时，工作组取得了3个主要成果：1)通过建立患者、家属或主要照顾者与导航员之间的伙伴关系，加强了当前的患者导航服务；2)确定家庭/照顾者在伴侣关系中可以履行的一系列核心职能；3)对护理人员和患者使用的一套指标达成共识。选择五个主要领域来衡量患者和/或护理人员的结果：生活质量、护理满意度、社会支持、痛苦和护理人员负担。推荐了适合每个领域的度量标准。结论：当前的导航服务需要整合这些领域和尺度，以开展未来的研究。来自此类研究的证据将有助于确定伙伴关系方法是否有助于改善患者和护理人员的结果。
BACKGROUND: Navigation services may be strengthened by establishing a partnership between the patient, family/caregiver, and the navigator. Involvement of a patient's familial or social network in the navigation process would allow patient navigators to spend more time and resources with the subset of patients who do not have support from family and friends. The Partnership Approach evolves from combining the strength of a patient's existing social support and network with the delivery of navigation services.METHODS: To develop this novel approach, the Family and Caregiver Workgroup was convened at the American Cancer Society's National Leadership Summit. Individuals were asked to serve in this group due to their interest, research, or experience in family and caregiver issues.RESULTS: By the end of the Summit, the workgroup had achieved 3 major outcomes: 1) enhancement of current patient navigation services by building a partnership between the patient, family or primary caregivers, and navigators; 2) identification of a set of core functions that a family/caregiver could perform in a partnership; and 3) consensus on a set of metrics to use with caregivers and patients. Five major domains were selected to measure patient and/or caregiver outcomes: quality of life, satisfaction with care, social support, distress, and caregiver burden. Metrics appropriate for each domain were recommended.CONCLUSIONS: Integration of these domains and scales in current navigation services is needed to develop future research. Evidence from such research would help determine whether the Partnership Approach contributes to improved patient and caregiver outcomes.