Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients' individual emotional and informational needs while reducing potential harms.
Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients' individual emotional and informational needs while reducing potential harms.
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DOI：
10.1016/j.procs.2022.09.098
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发表时间：
2022
期刊：
影响因子：
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通讯作者：
Rini C
中科院分区：
文献类型：
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作者：
Bovbjerg K;Graves K;Waltz M;Farrell D;Yanez B;Chicaiza A;Omar R;Thompson R;Kop M;Van Denburg AN;Lorch D;Rowley SD;Rini C
癌症患者通常希望从诊断或治疗相同的“同龄人”那里获得信息。为了增加对这一宝贵资源的访问，我们开发了一个网站，为接受干细胞移植的癌症患者提供书面同行支持。由于几乎没有证据描述如何优化书面同伴支持的益处或减少潜在的危害，我们收集了多种形式的利益相关者反馈，以告知网站的伦理方法、个性化、设计、功能和内容：社区咨询委员会；对患者书面同伴支持需求和动机的纵向研究；焦点小组；半结构化访谈；以及可用性测试。研究结果为网站开发提供了丰富的基础。
Cancer patients often want information from “peers” with the same diagnosis or treatment. To increase access to this valuable resource, we developed a website to deliver written peer support to cancer patients undergoing stem cell transplant. Because little evidence describes how to optimize benefits or reduce potential harms of written peer support, we gathered multiple forms of stakeholder feedback to inform the website’s ethical approach, personalization, design, function, and content: a Community Advisory Board; a longitudinal study of patients’ written peer support needs and motivations; focus groups; semi-structured interviews; and usability testing. Findings provide a rich foundation for website development.