Disability identity and attitudes toward cure in a sample of disabled activists

Disability identity and attitudes toward cure in a sample of disabled activists
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DOI:
10.1177/002214650404500407
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发表时间:
2004-12-01
影响因子:
5
通讯作者:
Belt, Todd L.
Belt, Todd L.
中科院分区:
医学2区
文献类型:
--
作者:
Hahn, Harlan D.;Belt, Todd L.

文献摘要

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这项研究调查了一种假设,即残疾人希望他们的功能能力得到改善,或者完全治愈。与这一假设相反,许多残疾活动家被发现有拒绝承诺治愈的治疗的态度。为了解释这种态度,残疾认同感的不同来源被分离出来作为潜在的预测变量。多变量模型显示,与个人对残疾的肯定有关的自我认同是拒绝治疗的重要预测因素,残疾的发病年龄也是如此。讨论了与医疗专业人员的互动和基于效用的医疗寻求建模的含义。
This study investigates the assumption that disabled people want improvements in their functional abilities, or complete cures. Contrary to this assumption, many disabled activists are found to have attitudes in which they refuse treatment that promises a cure. In order to explain this attitude, different sources of disability identity are isolated as potential predictor variables. A multivariate model reveals that self-identity related to a personal affirmation of disability is a significant predictor of refusal of treatment, as is the age of onset of disability. Implications for interactions with medical professionals and utility-based modeling of medical treatment seeking are discussed.