An mHealth App-Based Self-management Intervention for Family Members of Pediatric Transplant Recipients (myFAMI): Framework Design and Development Study.
An mHealth App-Based Self-management Intervention for Family Members of Pediatric Transplant Recipients (myFAMI): Framework Design and Development Study.
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作者：
Adib R;Das D;Ahamed SI;Lerret SM
实体器官移植是终末期器官衰竭儿童的首选治疗方法。移植后的持续恢复和家庭医疗管理对于恢复和过渡到日常生活非常重要。智能手机被广泛使用，并具有帮助建立移动的健康（mHealth）协议的潜力。医疗保健提供者、护士和计算机科学家合作设计和开发了mHealth家庭自我管理干预（myFAMI），这是一款基于智能手机的干预应用程序，旨在为儿科移植患者的家庭推广家庭自我管理干预。本文介绍了myFAMI应用程序框架的设计阶段和开发操作的结果，沿着主要挑战，限制和优势。myFAMI应用程序框架建立在儿科移植患者的基于理论的干预基础上，并得到了行动研究（AR）方法的帮助。基于最初定义的设计动机，研究人员团队合作探索了4个研究阶段（研究讨论，反馈和动机，alpha测试以及部署和发布改进），并开发了在现实世界中成功启动应用程序所需的功能。从应用程序用户及其功能出发，myFAMI应用程序框架由2个主要组件构建：Web应用程序（供护士和超级管理员使用）和智能手机应用程序（供参与者/家庭成员使用）。该网络应用程序存储调查响应，并根据家庭成员的响应在需要时向护士发出警报。智能手机应用程序将从服务器发送的通知呈现给参与者，并捕获调查响应。Web应用程序和智能手机应用程序都是基于行业标准的软件开发框架构建的，并且在研究参与者部署和使用时表现出出色的性能。本文总结了一个成功和有效的移动健康应用程序的建设过程中使用的理论为基础的干预护理和AR方法在计算机科学。专注于提高效率的因素，使应用程序的导航和数据收集变得容易。这项工作为研究人员仔细整合必要的信息（来自文献或经验丰富的临床医生）奠定了基础，以提供强大而有效的解决方案，并评估未来类似研究的可接受性，实用性和可用性。RR2-10.1002/nur.22010
Solid-organ transplantation is the treatment of choice for children with end-stage organ failure. Ongoing recovery and medical management at home after transplant are important for recovery and transition to daily life. Smartphones are widely used and hold the potential for aiding in the establishment of mobile health (mHealth) protocols. Health care providers, nurses, and computer scientists collaboratively designed and developed mHealth family self-management intervention (myFAMI), a smartphone-based intervention app to promote a family self-management intervention for pediatric transplant patients’ families. This paper presents outcomes of the design stages and development actions of the myFAMI app framework, along with key challenges, limitations, and strengths. The myFAMI app framework is built upon a theory-based intervention for pediatric transplant patients, with aid from the action research (AR) methodology. Based on initially defined design motivation, the team of researchers collaboratively explored 4 research stages (research discussions, feedback and motivations, alpha testing, and deployment and release improvements) and developed features required for successful inauguration of the app in the real-world setting. Deriving from app users and their functionalities, the myFAMI app framework is built with 2 primary components: the web app (for nurses’ and superadmin usage) and the smartphone app (for participant/family member usage). The web app stores survey responses and triggers alerts to nurses, when required, based on the family members’ response. The smartphone app presents the notifications sent from the server to the participants and captures survey responses. Both the web app and the smartphone app were built upon industry-standard software development frameworks and demonstrate great performance when deployed and used by study participants. The paper summarizes a successful and efficient mHealth app-building process using a theory-based intervention in nursing and the AR methodology in computer science. Focusing on factors to improve efficiency enabled easy navigation of the app and collection of data. This work lays the foundation for researchers to carefully integrate necessary information (from the literature or experienced clinicians) to provide a robust and efficient solution and evaluate the acceptability, utility, and usability for similar studies in the future. RR2-10.1002/nur.22010