What works when: mapping patient and stakeholder engagement methods along the ten-step continuum framework
What works when: mapping patient and stakeholder engagement methods along the ten-step continuum framework
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DOI：
10.2217/cer-2021-0043
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发表时间：
2021-06-04
影响因子：
2.1
通讯作者：
Mullins, C. D.
中科院分区：
文献类型：
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作者：
Edwards, Hillary A.;Huang, Jennifer;Mullins, C. D.
目的：这项研究提供了一个推荐的“患者参与翻译表”，确定了有意义的患者参与的循证方法，沿着持续参与的十步框架。材料和方法：我们使用混合方法研究设计来收集关于首选参与方法的数据，包括对现有文献的环境扫描、访谈和焦点小组与以患者为中心的结果研究利益相关者，以将方法与研究步骤相匹配，以及与主题专家一起修改德尔菲过程以创建最终翻译表。结果如下：循证参与方法包括社区伙伴关系、焦点小组、访谈、会议、分享印刷材料、社交媒体、讲故事、调查以及将患者纳入研究团队成员。结论：我们推荐的患者参与翻译表旨在帮助研究者确定与利益相关者进行有意义互动的适当参与方法。
Aim: This study provides a recommended 'patient engagement translation table' that identifies evidence-based methods for meaningful patient engagement along a ten-step framework for continuous engagement. Materials & methods: We used a mixed methods research design to collect data on preferred engagement methods, including an environmental scan of available literature, interviews and focus groups with patient-centered outcomes research stakeholders to match methods with research steps and a modified Delphi process with subject matter experts to create the final translation table. Results: Evidence-based engagement methods included community partnerships, focus groups, interviews, meetings, sharing print materials, social media, storytelling, surveys and including patients as research team members. Conclusion: Our recommended patient engagement translation table is designed to assist investigators in determining appropriate engagement methods for meaningful interactions with stakeholders.