Understanding disparity: Researchers strive to recruit more African Americans and other minorities to studies

Understanding disparity: Researchers strive to recruit more African Americans and other minorities to studies
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理解差异:研究人员努力招募更多非裔美国人和其他少数族裔进行研究

DOI:
10.1002/cncr.29247
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发表时间:
2015
期刊:
影响因子:
6.2
通讯作者:
C. Printz
C. Printz
中科院分区:
医学1区
文献类型:
--
作者:
C. Printz

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326癌症2015年2月1日梅毒实验,在1932年至1972年间进行。在那项研究中,研究人员故意不让患有这种疾病的农村非裔美国人男性接受青霉素治疗,即使在20世纪40年代证实它是一种有效的治疗方法之后也是如此。帕特尔博士指出,为了缓解这些持续存在的担忧,CPS-3招募人员通过教会中值得信赖的信仰领袖接触了非裔美国人,从而取得了“巨大的成功”。“我们必须明确,这不是一项干预性研究,他们不会被要求服药或做任何与平时不同的事情--只是对我们来说,了解他们在日常生活中所做的事情很重要,并通过观察检查他们患癌症的风险可能有哪些。她说,“成功的最大因素是与可靠的信息来源合作。”研究志愿者与一系列大型急诊室(至少有2500人参加)一起工作,这些会众往往以种族或民族为特征。在这些教会,成员在礼拜前收到招募信息,随后从讲坛上传递更多信息,然后立即获得登记机会。研究带头人还通过黑人女生联谊会和兄弟会传递信息。
326 Cancer February 1, 2015 syphilis experiment, conducted between 1932 and 1972. In that study, researchers deliberately withheld penicillin treatment from rural African American men with the disease, even after it was validated to be an effective cure in the 1940s. To alleviate some of those ongoing concerns, CPS-3 recruiters reached out to African Americans through trusted, faith-based leaders in their churches, leading to “pockets of tremendous success,” Dr. Patel notes.“We had to make it clear that this was not an intervention study and they wouldn’t be asked to take a pill or do anything different than what they normally do—just that it was important for us to learn about what they’re doing in their everyday lives and through that observation examine what may be associated with their risk of developing cancer,” she says.“The greatest factor for success was working with trusted sources of information.” Study volunteers worked with a series of megachurches (with congregations of at least 2500 individuals) that tend to be characterized by race or ethnicity. At these churches, members received recruitment information prior to the service, followed by more information delivered from the pulpit and then enrollment opportunities immediately afterward. Study leaders also delivered information through black sororities and fraternities.