The development of the EORTC QLQ-C15-PAL: A shortened questionnaire for cancer patients in palliative care

The development of the EORTC QLQ-C15-PAL: A shortened questionnaire for cancer patients in palliative care
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DOI:
10.1016/j.ejca.2005.06.022
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发表时间:
2006-01-01
影响因子:
8.4
通讯作者:
Bjorner, JB
Bjorner, JB
中科院分区:
医学1区
文献类型:
--
作者:
Groenvold, M;Petersen, MA;Bjorner, JB

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这项研究旨在开发EORTC QLQ-C30的简化版本,该问卷是肿瘤学中使用最广泛的与健康相关的生活质量问卷之一,用于姑息治疗研究。这项研究包括对41名姑息治疗患者和66名医疗保健专业人员的采访,以确定QLQ-C30各个领域的适当性、相关性和重要性。采用项目反应理论方法对量表进行缩短量表。患者和卫生保健专业人员认为疼痛、身体功能、情绪功能、疲劳、全球健康状况/生活质量、恶心/呕吐、食欲、呼吸困难、便秘和睡眠是最重要的。因此,这些量表/项目被保留在调查问卷中。在不降低测量精度的情况下,缩短了四个标尺。确定了调查问卷未涵盖的重要方面。由此产生的15个条目的EORTC QLQ-C15-PAL是一份关于姑息治疗的“核心问卷”。根据研究问题的不同,可能还会有其他项目、模块或问卷作为补充。(C)2005爱思唯尔有限公司。保留所有权利。
This study aimed at developing a shortened version of the EORTC QLQ-C30, one of the most widely used health-related quality of life questionnaires in oncology, for palliative care research. The study included interviews with 41 patients and 66 health care professionals in palliative care to determine the appropriateness, relevance and importance of the various domains of the QLQ-C30. Item response theory methods were used to shorten scales. Patients and health care professionals rated pain, physical function, emotional function, fatigue, global health status/quality of life, nausea/vomiting, appetite, dyspnoea, constipation, and sleep as most important. Therefore, these scales/items were retained in the questionnaire. Four scales were shortened without reducing measurement precision. Important dimensions not covered by the questionnaire were identified. The resulting 15-item EORTC QLQ-C15-PAL is a 'core questionnaire' for palliative care. Depending on the research questions, it may be supplemented by additional items, modules or questionnaires. (c) 2005 Elsevier Ltd. All rights reserved.