Patient perceptions of receiving test results via online portals: a mixed-methods study
Patient perceptions of receiving test results via online portals: a mixed-methods study
复制标题
DOI：
10.1093/jamia/ocx140
复制
发表时间：
2018-04-01
影响因子：
6.4
通讯作者：
Singh, Hardeep
中科院分区：
文献类型：
--
作者：
Giardina, Traber D.;Baldwin, Jessica;Singh, Hardeep
目的：在线门户网站为患者提供了访问他们的测试结果的机会，但目前尚不清楚患者如何使用这些工具来管理结果，以及哪些信息可用于促进理解。我们进行了一项混合方法的研究，以探索患者的经验和偏好时，访问他们的测试结果通过portals.Materials和方法：我们进行了95次采访（13个半结构化和82个结构化）与成人谁查看了测试结果在他们的门户网站之间2015年4月和2016年9月在4个大型门诊诊所在得克萨斯州休斯敦。半结构化访谈采用内容分析编码，转化为定量数据，并与结构化访谈数据相结合。描述性统计被用来总结结构化data.Results：近三分之二（63%）没有收到任何解释性信息或测试结果的解释，在他们收到结果的时候，和46%进行在线搜索，以进一步了解他们的结果。收到异常结果的患者更有可能经历负面情绪（56%比21%; P= 0.003），更有可能打电话给他们的医生（44%比15%; P= 0.002）相比，那些谁收到正常results.Discussion：研究结果表明，在线门户网站目前并没有设计以有意义的方式向患者呈现测试结果。患者经历的负面情绪往往与异常的结果，但有时甚至与正常的结果。简单地通过门户网站提供访问是不够的，需要额外的策略来帮助患者解释和管理他们的在线测试结果。结论：由于缺乏国家指导，我们的研究结果可以帮助加强这一领域的政策和实践，并为促进患者理解测试结果的创新提供信息。
Objective: Online portals provide patients with access to their test results, but it is unknown how patients use these tools to manage results and what information is available to promote understanding. We conducted a mixed-methods study to explore patients' experiences and preferences when accessing their test results via portals.Materials and Methods: We conducted 95 interviews (13 semistructured and 82 structured) with adults who viewed a test result in their portal between April 2015 and September 2016 at 4 large outpatient clinics in Houston, Texas. Semistructured interviews were coded using content analysis and transformed into quantitative data and integrated with the structured interview data. Descriptive statistics were used to summarize the structured data.Results: Nearly two-thirds (63%) did not receive any explanatory information or test result interpretation at the time they received the result, and 46% conducted online searches for further information about their result. Patients who received an abnormal result were more likely to experience negative emotions (56% vs 21%; P=.003) and more likely to call their physician (44% vs 15%; P=.002) compared with those who received normal results.Discussion: Study findings suggest that online portals are not currently designed to present test results to patients in a meaningful way. Patients experienced negative emotions often with abnormal results, but sometimes even with normal results. Simply providing access via portals is insufficient; additional strategies are needed to help patients interpret and manage their online test results.Conclusion: Given the absence of national guidance, our findings could help strengthen policy and practice in this area and inform innovations that promote patient understanding of test results.