Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Technology Infrastructure for a Distributed Data Network.

Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Technology Infrastructure for a Distributed Data Network.
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DOI:
10.13063/2327-9214.1027
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发表时间:
2013
期刊:
EGEMS (Washington, DC)
影响因子:
--
通讯作者:
Kahn MG
Kahn MG
中科院分区:
其他
文献类型:
--
作者:
Schilling LM;Kwan BM;Drolshagen CT;Hosokawa PW;Brandt E;Pace WD;Uhrich C;Kamerick M;Bunting A;Payne PR;Stephens WE;George JM;Vance M;Giacomini K;Braddy J;Green MK;Kahn MG

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分布式数据网络(DDN)为共享来自不同数据源的电子健康数据提供基础设施解决方案,以支持比较有效性研究。数据共享机制必须解决网络安全和数据披露法律及最佳实践(如HIPAA)引起的技术和治理问题。联合翻译查询网络的可扩展架构(SAFTINet)部署了三合一网格技术、通用数据模型、详细的技术文档和用于数据协调的定制软件,以促进与安全网人口护理中的利益相关者合作共享数据。数据共享合作伙伴在其内部或托管的网络环境中托管包含协调临床数据的Triad网格节点。授权用户可以使用基于网络的中央查询系统来请求分析数据集。SAFTINet DDN基础设施实现了若干数据共享目标,包括可扩展和可持续的系统,以确保统一的数据结构和术语以及安全的分布式查询。通过迭代讨论、开发和实施技术文档、治理和技术解决方案,解决了最初的实施挑战。
Distributed Data Networks (DDNs) offer infrastructure solutions for sharing electronic health data from across disparate data sources to support comparative effectiveness research. Data sharing mechanisms must address technical and governance concerns stemming from network security and data disclosure laws and best practices, such as HIPAA. The Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) deploys TRIAD grid technology, a common data model, detailed technical documentation, and custom software for data harmonization to facilitate data sharing in collaboration with stakeholders in the care of safety net populations. Data sharing partners host TRIAD grid nodes containing harmonized clinical data within their internal or hosted network environments. Authorized users can use a central web-based query system to request analytic data sets. SAFTINet DDN infrastructure achieved a number of data sharing objectives, including scalable and sustainable systems for ensuring harmonized data structures and terminologies and secure distributed queries. Initial implementation challenges were resolved through iterative discussions, development and implementation of technical documentation, governance, and technology solutions.