Development and Pilot Testing of a Coping Kit for Parents of Hospitalized Children
Development and Pilot Testing of a Coping Kit for Parents of Hospitalized Children
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DOI：
10.1016/j.acap.2018.11.001
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发表时间：
2019-05-01
影响因子：
3.1
通讯作者：
Feudtner, Chris
中科院分区：
文献类型：
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作者：
Hill, Douglas L.;Carroll, Karen W.;Feudtner, Chris
目的：严重的儿科疾病给家庭带来了巨大的压力。学习应对技巧的父母可能会更好地管理这些压力源。本研究旨在为住院儿童的父母制定和完善压力应对干预措施，评估这些父母对干预措施的可接受性，并收集有关压力、消极和积极情感、焦虑、抑郁和自我效能的初步数据。我们分两个阶段进行了一项观察性研究，招募了患有严重疾病的住院儿童的父母，第一阶段10个，第二阶段40个。所有的父母都完成了压力和心理健康的基线测量，并被介绍给父母应对工具包。在1周时进行随访（所有父母）和1个月（仅限第2阶段家长）关于干预的可接受性。在基线时，父母报告说，压力的情况是频繁的（平均值= 30.6，标准差[SD] = 6.8）和困难（平均值= 26.2，SD = 7.1），并显示负面影响水平升高（平均值= 27.3，SD = 7.7），抑郁症（平均值= 8.5，SD = 3.7），焦虑（平均值= 11.3，SD = 3.1）和中等水平的自我效能感与他们的孩子的疾病（平均值= 3.3，SD = 0.5）。大多数家长定期使用该工具包，并在1至7级的范围内同意该工具包是有帮助的（平均值= 6.0，SD = 0.9），有趣（平均值= 5.7，SD = 1.3），实际（平均值= 5.7，SD = 1.4），愉快（平均值= 6.0，SD = 1.3），他们会推荐给其他父母结论：父母应对工具包是一种可接受的压力管理干预措施，可以在儿科医院提供给患有严重疾病的儿童的父母，只需最少的工作人员培训或时间承诺。
OBJECTIVE: Serious pediatric illness places great stress on families. Parents who learn coping skills may better manage these stressors. This study sought to develop and refine a stress coping intervention for parents of hospitalized children, assess the intervention acceptability among these parents, and gather preliminary data on stress, negative and positive affect, anxiety, depression, and self-efficacy.METHODS: We conducted an observational study in 2 phases, enrolling parents of children who were inpatients with serious illness, 10 in Phase 1 and 40 in Phase 2. All parents completed at baseline measures of stress and psychological well-being and were introduced to the Coping Kit for Parents. Follow-up interviews were conducted at 1 week (all parents) and 1 month (Phase 2 parents only) regarding the acceptability of the intervention.RESULTS: At baseline, parents reported that stressful situations were frequent (mean = 30.6, standard deviation [SD] = 6.8) and difficult (mean = 26.2, SD = 7.1) and revealed elevated levels of negative affect (mean = 27.3, SD = 7.7), depression (mean = 8.5, SD = 3.7), and anxiety (mean = 11.3, SD = 3.1) and moderate levels of self-efficacy related to their child's illness (mean = 3.3, SD = 0.5). The majority of parents used the kit regularly and on a scale of 1 to 7 agreed that the kit was helpful (mean = 6.0, SD = 0.9), interesting (mean = 5.7, SD = 1.3), practical (mean = 5.7, SD = 1.4), enjoyable (mean = 6.0, SD = 1.3), and they would recommend it to other parents (mean = 6.4, SD = 0.9).CONCLUSIONS: The Coping Kit for Parents is an acceptable stress management intervention that could be made available to parents of children with serious illness at pediatric hospitals with minimal staff training or time commitment.