The PedsQL as a pediatric patient-reported outcome: reliability and validity of the PedsQL Measurement Model in 25,000 children.
The PedsQL as a pediatric patient-reported outcome: reliability and validity of the PedsQL Measurement Model in 25,000 children.
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DOI：
10.1586/14737167.5.6.705
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发表时间：
2005-12-01
影响因子：
2.3
通讯作者：
Seid, Michael
中科院分区：
文献类型：
--
作者：
Varni, James W;Burwinkle, Tasha M;Seid, Michael
PedsQL测量模型被设计为测量儿科健康相关生活质量的模块化方法，并被开发为整合通用和疾病特异性方法的相对优点。PedsQL 4.0通用核心量表已被翻译成60多种语言，自2001年以来，在超过75种同行评审期刊上发表了超过25，000名儿童和青少年的健康儿童和许多儿科慢性健康状况的数据。PedsQL疾病和状况特定模块旨在测量专门针对儿科慢性健康状况定制的健康相关生活质量维度，包括PedsQL哮喘、关节炎/风湿病、癌症、糖尿病、心脏和脑瘫模块，以及通用PedsQL多维疲劳量表、儿科疼痛问卷、家庭影响模块和医疗保健满意度模块。PedsQL已经证明了5-18岁儿童自我报告和2-18岁父母代理报告的可靠性、有效性、敏感性和反应性。PedsQL已被证明与儿科医疗保健中的其他关键结构相关，例如获得所需护理、医疗保健障碍和初级保健质量。PedsQL（）测量模型的未来进展包括基于网络的电子给药（ePedsQL），整合到电子病历中，进一步的疗效和有效性结局试验，包括PedsQL ResourceConnect（SM）和PedsQL TIPS（SM），开发适用于出生至24个月的通用PedsQL婴儿量表，以及其他儿科慢性健康状况的疾病和病症特定模块。
The PedsQL Measurement Model was designed as a modular approach to measuring pediatric health-related quality of life, and developed to integrate the relative merits of generic and disease-specific approaches. The PedsQL 4.0 Generic Core Scales have been translated into over 60 languages, with published data on over 25,000 children and adolescents in more than 75 peer-reviewed journals since 2001 for healthy children and numerous pediatric chronic health conditions. The PedsQL Disease and Condition-Specific Modules were designed to measure health-related quality-of-life dimensions specifically tailored for pediatric chronic health conditions, and include the PedsQL Asthma, Arthritis/Rheumatology, Cancer, Diabetes, Cardiac and Cerebral Palsy Modules, as well as the generic PedsQL Multidimensional Fatigue Scale, Pediatric Pain Questionnaire, Family Impact Module and Healthcare Satisfaction Module. The PedsQL has demonstrated reliability, validity, sensitivity and responsiveness for child self report for ages 5-18 years and parent proxy report for ages 2-18 years. The PedsQL has been shown to be related to other key constructs in pediatric healthcare such as access to needed care, healthcare barriers and quality of primary care. Future advances in the PedsQL() Measurement Model include web-based electronic administration (ePedsQL), integration into the electronic medical record, further efficacy and effectiveness outcome trials, including PedsQL ResourceConnect(SM) and PedsQL TIPS(SM), the development of the generic PedsQL Infant Scales for ages birth to 24 months and disease and condition-specific modules for other pediatric chronic health conditions.