Impacts of mandated data collection on syringe distribution programs in the United States.
Impacts of mandated data collection on syringe distribution programs in the United States.
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强制数据收集对美国注射器分发计划的影响。
DOI：
10.1016/j.drugpo.2020.102725
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发表时间：
2020
期刊：
影响因子：
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通讯作者：
Marquesen,Michael
中科院分区：
文献类型：
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作者：
Davidson,Peter;Chakrabarti,Priya;Marquesen,Michael
目的注射器分配计划(SDP)是针对HIV和其他血液传播疾病在注射吸毒者中传播的一种经过充分验证的公共卫生对策。美国的许多SDP被要求从服务用户那里收集数据，作为合法授权运营的条件或作为提供资金的条件。我们试图通过一项在线调查来描述这种外部强制数据收集的普遍性以及对美国注射器分配项目(SDP)服务提供的影响。方法在线调查美国SDP。95.2%收集个人服务用户的数据，其中76.7%被外部实体要求这样做，作为法律授权的条件，和/或作为供资条件。只有21.7%的受权受访者收到了有关数据使用情况的报告。60%的人报告说，由于服务使用者担心失去匿名性和/或执法，数据收集成为向吸毒者提供注射器的障碍。33·3%的人报告说，收集数据所需的计算机素养和语言技能意味着不能聘请合适的社区成员作为工作人员或志愿者。结论在疾病预防中心收集数据可能会成为向艾滋病毒和其他血液传播病毒高危人群提供服务的障碍，并给经常资源不足的公共卫生项目带来相当大的后勤负担。此外，对于SDP来说，他们的数据被用于什么目的往往是不清楚的。我们认为，为了符合道德标准，数据收集的目的应该得到仔细考虑，并定期进行审查，以确保数据被用于有意义的用途，与提供服务的影响相称。
ObjectivesSyringe Distribution Programs (SDPs) are a well-proven public health response to the spread of HIV and other blood borne illnesses among people who inject drugs. Many SDPs in the United States are required to collect data from service users as a condition of either legal authorization to operate or as a condition of funding. We sought to describe the prevalence of such externally mandated data collection and impact on service delivery at syringe distribution programs (SDPs) in the United States via an online survey.MethodsOnline survey of SDPs in the US.Results63 SDPs participated. 95•2% collected data about individual service users, with 76•7% being mandated to do so by an external entity as a condition of legal authorization, and/or as a condition of funding. Only 21•7% of mandated respondents received any report back on how data was used. 60•0% reported that data collection acted as a barrier to providing syringes to people who use drugs due to service user fears about loss of anonymity and/or law enforcement. 33•3% reported that the computer literacy and language skills required to collect data meant otherwise appropriate members of the community could not he hired as staff or volunteers.ConclusionsData collection at SDPs may act as a barrier to service provision to populations at high risk for HIV and other blood born viruses, and place considerable logistic burdens on often under-resourced public health programs. Further, it is often unclear to SDPs what purpose their data is being put to. We argue that to be ethical, the purpose of data collection should be carefully considered and regularly reviewed to ensure data is being put to meaningful purpose which is commensurate with impacts on service delivery.