Fighting Over Food: Patient and Family Understanding of Cancer Cachexia

Fighting Over Food: Patient and Family Understanding of Cancer Cachexia
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DOI:
10.1188/09.onf.439-445
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发表时间:
2009-07-01
影响因子:
1.9
通讯作者:
McCance, Tanya
McCance, Tanya
中科院分区:
医学4区
文献类型:
--
作者:
Reid, Joanne;McKenna, Hugh;McCance, Tanya

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目的/目标:目的:探讨晚期癌症恶病质患者及其家属之间因食物引起的紧张关系。研究方法:采用非结构化访谈进行海德格尔现象学调查。地点:英国一个地区癌症中心。参与者:8名晚期癌症恶病质患者及其8名家属。方法:单一的非结构化访谈被数字化记录,逐字转录,并使用主题和解释性现象学分析进行分析。主要研究变量:恶病质和晚期癌症。在给病人提供食物和强迫病人吃东西之间存在着微妙的界限;经常会因此发生冲突。该冲突的贡献者集中在减少饮食摄入量的病人和拒绝食物的家庭,这往往导致病人吃pleas.Conclusions的反应:这项研究突出了焦虑,周围的饮食和痛苦,它会导致患者和他们的家人。这种紧张可能会升级为关于食物的争论,对患者及其家人造成负面影响。解释:这是第一项揭示晚期癌症和恶病质患者及其家人对饮食的紧张情绪的研究。护士在为这一患者群体设计和提供有效护理时必须考虑这一问题。
Purpose/Objectives: To investigate tensions over food that exist between patients with advanced cancer with cachexia and their families.Research Approach: Heideggerian phenomenologic inquiry using unstructured interviews.Setting: A regional cancer center in the United Kingdom.Participants: 8 patients with advanced cancer living with cachexia and 8 family members.Methodologic Approach: Singular unstructured interviews were recorded digitally, transcribed verbatim, and analyzed using thematic and interpretative phenomenologic analysis.Main Research Variables: Cachexia and advanced cancer.Findings: A fine line existed between offering food to a patient and forcing a patient to eat; often, conflict arose as a result. Contributors to that conflict focused on reduced dietary intake by the patient and the reaction to food refusal by the family, which frequently led to patients eating to please.Conclusions: This study highlights the anxiety that surrounds eating and the distress it causes to patients and their families. This strain can escalate into arguments over food, causing negative repercussions for patients and their family members.Interpretation: This is the first study to uncover tensions about eating as experienced by patients with advanced cancer and cachexia and their families. Nurses must consider this issue when designing and delivering effective care for this patient population.