Pregnant women's perspectives on umbilical cord blood banking.

Pregnant women's perspectives on umbilical cord blood banking.
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孕妇对脐带血储存的看法。

DOI:
10.1089/jwh.1998.7.747
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发表时间:
1998
期刊:
Journal of women's health
影响因子:
--
通讯作者:
Olson,J
Olson,J
中科院分区:
--
文献类型:
--
作者:
Sugarman,J;Kaplan,L;Cogswell,B;Olson,J

文献摘要

被引文献

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有希望的临床结果表明,分娩后收集的脐带血(UCB)可能比骨髓移植有许多优势。由于收集脐带血的选择越来越多,包括私人和公共银行,可能会要求更多的孕妇决定是否收集脐带血。我们对孕妇进行了三个焦点小组,以了解她们对这项新兴技术的看法。这些重点小组中的所有妇女都表示,她们将选择收集脐带血。导致这种选择的原因是,UCB否则将被丢弃和利他主义。参与者表示,决定不收集UCB的可能原因包括对母亲和新生儿安全的担忧,对胎盘的信念,对保密性的威胁,UCB的拒绝以及父亲的影响。虽然妇女们对提前作出关于收集统一商业票据的决定感到有信心,但她们明确表示希望更多地了解统一商业票据的收集、储存(包括公共银行和私人银行之间的区别)和使用。此外,他们认为,UCB收集的招募应该在对UCB进行充分教育之后进行,而不是在交付和收集之后进行。这些数据将有助于指导工作,帮助妇女决定是否收集脐带血,并制定适当的征聘和知情同意程序,将脐带血捐赠给公共银行。
Promising clinical results suggest that umbilical cord blood (UCB) collected after delivery of a child may have many advantages over bone marrow for transplantation. As there are an increasing number of options regarding the collection of UCB, including private and public banking, more pregnant women are likely to be asked to make decisions about UCB collection. We conducted three focus groups with pregnant women to learn about their perspectives on this emerging technology. All the women in these focus groups indicated that they would choose to have UCB collected. Reasons leading to this choice were that the UCB would otherwise be discarded and altruism. Participants indicated that possible reasons to decide not to have UCB collected include concerns about the safety of the mother and neonate, beliefs about the placenta, threats against confidentiality, rejection of UCB, and the influence of fathers. While feeling confident in making an anticipatory decision about UCB collection, women expressed a clear desire to learn much more about the collection, storage (including distinctions between public and private banking), and use of UCB. In addition, they believed that recruitment for UCB collection should occur after sufficient education about UCB and certainly not after delivery and collection. These data will be useful in guiding efforts to help women make decisions about having UCB collected and in developing an appropriate recruitment and informed consent process for donating UCB to a public bank.