Frequent Surfing on Social Health Networks is Associated With Increased Knowledge and Patient Health Activation.
Frequent Surfing on Social Health Networks is Associated With Increased Knowledge and Patient Health Activation.
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DOI：
10.2196/jmir.5832
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发表时间：
2016-08-10
影响因子：
7.4
通讯作者：
Magnezi R
中科院分区：
文献类型：
--
作者：
Grosberg D;Grinvald H;Reuveni H;Magnezi R
互联网的出现推动了一场技术革命，改变了我们的生活。作为这一现象的一部分，社交网络在医疗保健方面发挥了突出作用。通过互联网提供各种医疗服务，包括家庭监测、病人和服务提供者之间的互动通信以及社会支持等。本研究强调了基于网络的健康社会网络对患者和卫生保健系统的一些实际意义。本研究的目的是基于患者激活测量（PAM），评估慢性疾病患者参与社会网络对患者激活的影响。前瞻性，横断面调查与回顾性的组成部分进行。数据收集自Camoni，一个基于希伯来语的社会健康网络，2012年11月至2013年11月期间糖尿病、疼痛、高血压和抑郁/焦虑论坛的参与者。有经验的用户（注册至少6个月）和新注册的用户收到相同问卷的类似版本，包括社会人口统计学和PAM。在686名参与者中，337名有经验的参与者中有154名完成了问卷，349名新参与者中有123名完成了问卷。现场访问频率和持续时间与患者激活、社会关系和慢性疾病知识呈正相关（P< 0.05）。男性冲浪时间长于女性（χ 2 3=10.104， P< 0.05）。经验丰富的糖尿病患者上网次数多于其他疾病患者，其PAM评分也显著高于新用户（M=62.8， SD=18.7， PAM水平3）（均值，M=69.3，标准差，SD=19.1， PAM水平4；Z= - 4.197， P< 0.001）。疾病知识直接预测了所有用户的PAM (β= 0.26和。分别为21)。使用社会健康网络的频率和持续时间与慢性病知识的增加相关。经验丰富的冲浪者比新注册的人有更高的PAM，这表明持续使用网站可能有助于增加激活。基于web的社会卫生网络提供了扩大患者知识和增加对个人健康的参与的机会，从而提高了患者的积极性。需要进一步的研究来检查这些变化对慢性疾病的其他方面，如生活质量和成本。
The advent of the Internet has driven a technological revolution that has changed our lives. As part of this phenomenon, social networks have attained a prominent role in health care. A variety of medical services is provided over the Internet, including home monitoring, interactive communications between the patient and service providers, and social support, among others. This study emphasizes some of the practical implications of Web-based health social networks for patients and for health care systems. The objective of this study was to assess how participation in a social network among individuals with a chronic condition contributed to patient activation, based on the Patient Activation Measure (PAM). A prospective, cross-sectional survey with a retrospective component was conducted. Data were collected from Camoni, a Hebrew-language Web-based social health network, participants in the diabetes mellitus, pain, hypertension, and depression/anxiety forums, during November 2012 to 2013. Experienced users (enrolled at least 6 months) and newly enrolled received similar versions of the same questionnaire including sociodemographics and PAM. Among 686 participants, 154 of 337 experienced and 123 of 349 newly enrolled completed the questionnaire. Positive correlations (P<.05) were found between frequency and duration of site visits and patient activation, social relationships, and chronic disease knowledge. Men surfed longer than women (χ²3=10.104, P<.05). Experienced users with diabetes surfed more than those with other illnesses and had significantly higher PAM scores (mean, M=69.3, standard deviation, SD=19.1, PAM level 4; Z=−4.197, P<.001) than new users (M=62.8, SD=18.7, PAM level 3). Disease knowledge directly predicted PAM for all users (β=.26 and .21, respectively). Frequency and duration of social health network use were correlated with increased knowledge about a chronic disease. Experienced surfers had higher PAM than newly enrolled, suggesting that continued site use may contribute to increased activation. Web-based social health networks offer an opportunity to expand patient knowledge and increase involvement in personal health, thereby increasing patient activation. Further studies are needed to examine these changes on other aspects of chronic illnesses such as quality of life and costs.