Survivorship issues following treatment completion--results from focus groups with Australian cancer survivors and health professionals.
Survivorship issues following treatment completion--results from focus groups with Australian cancer survivors and health professionals.
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DOI：
10.1007/s11764-008-0043-4
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发表时间：
2008-03-01
期刊：
影响因子：
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通讯作者：
Schofield, Penelope
中科院分区：
文献类型：
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作者：
Jefford, Michael;Karahalios, Emily;Schofield, Penelope
背景：癌症幸存者的数量正在急剧增加。许多幸存者报告了长期的心理、身体和其他后果。为了了解澳大利亚癌症幸存者面临的问题，我们与癌症患者和卫生专业人员进行了焦点小组讨论。方法：通过主要癌症治疗中心（Peter Mac）的同伴支持项目确定患者。还从Peter Mac招募了卫生专业人员。焦点小组遵循基于从文献中确定的主题的半结构化格式。问题集中在治疗完成情况和治疗后1年。与会者还被要求提出解决已确定问题的办法。焦点小组被录音，转录，交叉检查准确性，并独立分析。结果：在治疗结束时，幸存者和专业人员报告的最常见需求（就频率和强度而言）是处理疲劳，对癌症复发的焦虑，其他人希望你恢复正常，不得不对身体能力产生新的期望，以及离开医院系统的焦虑。1岁时最常见的需求是对检查和结果的焦虑，以及提前进入更年期。最常见的满足这些感知需求的方法是让幸存者放心，让他们觉得自己很正常，并让他们与其他有同样经历的人接触。讨论：在幸存者和卫生专业人员确定的主题中有高度的一致性。对癌症幸存者的启示：这些结果为开发治疗完成后支持癌症幸存者的资源提供了明确的方向。
BACKGROUND: The number of cancer survivors is increasing dramatically. Many survivors report long-term psychosocial, physical and other consequences. To understand the issues faced by Australian cancer survivors we conducted focus groups with cancer patients and health professionals.METHODS: Patients were identified through a peer support program at a major cancer treatment center (Peter Mac). Health professionals were also recruited from Peter Mac. Focus groups followed a semi-structured format based on themes identified from the literature. Questions focused on treatment completion, and 1 year post-treatment. Participants were also asked to suggest solutions to address identified issues. Focus groups were taped, transcribed, cross-checked for accuracy, and analyzed independently.RESULTS: The most common needs (in terms of both frequency and intensity) reported at treatment completion by both survivors and professionals were dealing with fatigue, anxiety about cancer recurrence, others expecting you to be back to normal, having to create new expectations about physical ability, and anxiety about leaving the hospital system. The most common needs at 1 year were anxiety about check-ups and results, and going into early menopause. The most frequently suggested ways of meeting these perceived needs were reassuring survivors the way they feel is normal and putting them in contact with others who have been through the same experience.DISCUSSION: There was a high level of congruence in the themes identified by survivors and health professionals.IMPLICATIONS FOR CANCER SURVIVORS: These results provide a clear direction for the development of resources to support cancer survivors following treatment completion.