Community Advisory Boards Guiding Engaged Research Efforts within a Clinical Translational Sciences Award: Key Contextual Factors Explored
Community Advisory Boards Guiding Engaged Research Efforts within a Clinical Translational Sciences Award: Key Contextual Factors Explored
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DOI：
10.1353/cpr.2017.0044
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发表时间：
2017-12-01
影响因子：
1.1
通讯作者：
Corbie-Smith, Giselle
中科院分区：
文献类型：
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作者：
Halladay, Jacqueline R.;Donahue, Katrina E.;Corbie-Smith, Giselle
背景：让利益相关者参与研究有望提高研究的相关性、透明度和将研究成果付诸实践的速度。通过描述利益相关者团体的背景和功能方面，如那些作为社区咨询委员会(CAB)工作的利益相关者团体，其他人可以从这些经验中学习并实施他们自己的CAB。我们的目标是描述我们在我们机构的临床翻译科学奖(CTSA)中与社区参与组相关的不同CAB的经验。我们确定了对CAB管理至关重要的关键背景要素。方法：一组调查人员、工作人员和社区成员参与了为期6个月的合作，描述他们与6个研究CAB合作的经验。我们确定了说明如何开发和维持CAB的关键上下文域。两位主要作者，具有CAB经验并在其他工作中识别上下文域，带领一个13人的团队完成了这一过程。结果：最终领域包括(1)利益相关者之间一致的使命(2)资源/支持，(3)明确的操作流程/共享权力，(4)描述良好的成员角色，以及(5)理解和缓解挑战。这些提示是一组支持领域的操作。结论：确定关键的上下文域相对容易，尽管各自CAB的关注情况、总体任务或患者人口统计数据存在差异。通过将这五个领域联系起来，其他研究和社区合作伙伴可以采取知情的方法来推进CAB规划和参与的研究。
Background: Engaging stakeholders in research carries the promise of enhancing the research relevance, transparency, and speed of getting findings into practice. By describing the context and functional aspects of stakeholder groups, like those working as community advisory boards (CABs), others can learn from these experiences and operationalize their own CABs. Our objective is to describe our experiences with diverse CABs affiliated with our community engagement group within our institution's Clinical Translational Sciences Award (CTSA). We identify key contextual elements that are important to administering CABs.Methods: A group of investigators, staff, and community members engaged in a 6-month collaboration to describe their experiences of working with six research CABs. We identified the key contextual domains that illustrate how CABS are developed and sustained. Two lead authors, with experience with CABs and identifying contextual domains in other work, led a team of 13 through the process. Additionally, we devised a list of key tips to consider when devising CABs.Results: The final domains include (1) aligned missions among stakeholders (2) resources/support, (3) defined operational processes/shared power, (4) well-described member roles, and (5) understanding and mitigating challenges. The tips are a set of actions that support the domains.Conclusions: Identifying key contextual domains was relatively easy, despite differences in the respective CAB's condition of focus, overall mission, or patient demographics represented. By contextualizing these five domains, other research and community partners can take an informed approach to move forward with CAB planning and engaged research.