Quality of life in patients with established inflammatory bowel disease: a UK general practice survey
Quality of life in patients with established inflammatory bowel disease: a UK general practice survey
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DOI：
10.1111/j.1365-2036.2004.1873.x
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发表时间：
2004-03-01
影响因子：
7.6
通讯作者：
Dwarakanath, D
中科院分区：
文献类型：
--
作者：
Rubin, GP;Hungin, APS;Dwarakanath, D
背景资料：目前对炎症性肠病患者生活质量损害的理解主要来自选定的人群，可能无法反映社区患者的经验，社区中可能只有不到一半的患者接受专科护理。目的：描述一个社区中与健康相关的生活质量-方法：选取确诊为炎症性肠病的患者为研究对象，探讨其与疾病类型、程度、性别、年龄、物质匮乏等因素的关系。从英格兰东北部的23个家庭实践记录中系统地确定了患有炎症性肠病的成年人。结果：五十六例患者接受调查，其中409例（74%）给出了有效的回答。较低的评分（较差的生活质量）与女性性别、克罗恩病、更广泛的疾病（溃疡性结肠炎）和专科护理显著相关。平均健康相关的生活质量评分显着较低的患者居住在更贫困的地区，独立的类型和程度的diseases.Conclusions：大多数患者建立炎症性肠病表现出轻微损害他们的健康相关的生活质量。平均而言，女性和克罗恩病患者受到的影响相对更大。负责炎症性肠病患者护理的临床医生应该意识到这些更脆弱的群体。
Background: The current understanding of quality of life impairment in inflammatory bowel disease has largely been derived from selected populations and may not reflect the experience of patients in the community, where fewer than half are likely to be under specialist care.Aim: To describe the health-related quality of life in a community-based sample of patients with established inflammatory bowel disease and explore its association with the type and extent of disease, gender, age, material deprivation and other factors.Methods: Adults with established inflammatory bowel disease were identified systematically from the records of 23 family practices in north-east England. The health-related quality of life was assessed by self-completion of the UK Inflammatory Bowel Disease Questionnaire.Results: Five hundred and fifty-six patients were sent the questionnaire and 409 (74%) gave usable replies. Lower scores (worse quality of life) were significantly associated with female gender, Crohn's disease, more extensive disease (ulcerative colitis) and being under specialist care. The mean health-related quality of life score was significantly lower in patients resident in more deprived districts, independent of the type and extent of disease.Conclusions: Most patients with established inflammatory bowel disease showed only minor impairment of their health-related quality of life. On average, women and those with Crohn's disease were relatively more affected. Clinicians responsible for the care of patients with inflammatory bowel disease should be aware of these more vulnerable groups.