Longitudinal remote monitoring of hidradenitis suppurativa: a pilot study.
Longitudinal remote monitoring of hidradenitis suppurativa: a pilot study.
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化脓性汗腺炎的纵向远程监测：一项试点研究。
DOI：
10.1093/bjd/ljad385
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发表时间：
2024
期刊：
影响因子：
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通讯作者：
Linos,Eleni
中科院分区：
文献类型：
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作者：
Fonjungo,FonetteE;Barnes,LeandraA;Cai,ZhuoRan;Naik,HaleyB;Eid,EdwardS;Aleshin,MariaA;Nava,Vanessa;Johnson,Tiffani;Chren,Mary-Margaret;Linos,Eleni
我们试图研究在家中纵向监测化脓性汗腺炎 (HS) 患者疾病活动的可行性。在 6 个多月的时间里，我们的新颖数字工具收集了 27 名参与者的 421 张受 HS 影响的皮肤照片，并捕捉了疼痛和生活质量评分的趋势。我们发现患有轻度疾病的参与者比患有更严重疾病的参与者更有可能分享他们的进展，这是有利的，因为它可能表明远程监测在跟踪疾病进展方面的作用。该试点项目提供了支持未来研究的概念证明。
We sought to investigate the feasibility of longitudinal monitoring of disease activity from home in people with hidradenitis suppurativa (HS). Over 6 months, our novel digital tool collected 421 photos of HS-affected skin from 27 participants and captured trends in pain and quality of life scores. We found that participants with mild disease were more likely to share their progress than those with more severe disease, which is favourable as it may suggest a role for remote monitoring in tracking disease progression. This pilot provides proof of concept that will support future studies.